📢A proposed federal rule could let the government cancel active #MECFS research mid-study when political priorities change. The public comment window closes July 13.
Take action: https://ow.ly/J5EP50ZcpV0
How to submit a public comment: https://ow.ly/Oq6150ZcpUZ
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#MEAwarenessHour
A mention of sodium phenylbutyrate (used in ALS treatment) as a potential treatment (needs tested) for the WASF3 finding in #MECFS 👀
[If you’re unfamiliar with Dr. Kaufman check out Unraveled podcast on YouTube - great info that can be trusted!]
@bendybunny.bsky.social
1/ A proposed federal rule could let the government cancel active ME/CFS research mid-study when political priorities change.
The public comment window closes July 13. Here's what you can do 🧵
The FDA just extended this deadline until July 11—if you haven’t yet commented, there’s plenty of time left!
Solve M.E.
Alexis M.
Preprint out on a new #PEM validation tool 🧪
www.researchsquare.com/article/rs-1...
#MECFS #LongCOVID
NEW & NOTEWORTHY We provide objective evidence that skeletal muscle microvascular reactivity is significantly impaired in patients with post-COVID-19 syndrome (PCS) compared with recovered controls. Using near-infrared spectroscopy, we demonstrate that this blunted microvascular reperfusion persists
Chronic Illness Humor
Very important systematic review paper by C. Armstrong et al.
Mapping cerebral blood flow in myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) and orthostatic intolerance: insights from a systematic review
#ME/CFS #CBF #OI
LA Times: 'What COVID is teaching doctors about the relationship between viruses and cancer'
'The rapid increase in patients suffering from long COVID supercharged research on post-viral syndromes — the complex collection of lingering symptoms...'
www.latimes.com/science/stor...
Taking a much needed break from Trump madness with my new Substack post focused on science, medicine, and emerging potential therapeutics for complex illnesses like Long Covid and ME/CFS. Please enjoy, comment, subscribe.
dlkmd.substack.com/p/complex-ch...
Solve M.E.
Today @thesicktimes.org: Research ethics boards urgently need training on Long COVID and ME, @spichaksimon.bsky.social argues. Better training could help prevent studies that may harm patients, like those trialing exercise. thesicktimes.org/2026/06/02/r...
Objectives Post-exertional malaise (PEM) is increasingly understood not as a singular symptom but as a multidimensional exertion-response pattern involving diverse triggers, variable onset, and prolon...
www.researchsquare.com
Current evidence demonstrates that patients who suffer from long-term SARS-CoV-2 symptoms [i.e., post-COVID-19 syndrome (PCS)] often present muscle fatigue and dyspnea. This is discussed to be a resul...
Background Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a complex and debilitating condition with a large proportion of patients that experience orthostatic intolerance (OI). This sy...
link.springer.com
The pandemic has left some evidence that viral infection may play a role in reawakening dormant cancer cells already present in a patient’s body before infection.
www.latimes.com
Why the Lights at the End of the Chronic Illness Tunnels are Growing Brighter
Last year, researchers in Ontario, Canada started recruiting participants for a Long COVID trial testing the feasibility of exercise and rehabilitation. Like many other studies of exercise, it doesn’t...
