Why are RECOVER’s first round of #LongCOVID clinical trials failing?
In this episode of Still Here, producer @melaniemarich.bsky.social talks to @betsyladyzhets.bsky.social about why NIH trial results have left many patients and advocates in the Long COVID community disappointed.
🎧 bit.ly/4uNNdTD
What happens when you write a letter to an ethics board about concerns over a Long COVID trial? The ethics committee sends a response to an entirely different group of people and tells you to contact them to get a response!
My commentary for @thesicktimes.org
thesicktimes.org/2026/06/02/r...
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Today @thesicktimes.org: Research ethics boards urgently need training on Long COVID and ME, @spichaksimon.bsky.social argues. Better training could help prevent studies that may harm patients, like those trialing exercise. thesicktimes.org/2026/06/02/r...
Last year, researchers in Ontario, Canada started recruiting participants for a Long COVID trial testing the feasibility of exercise and rehabilitation. Like many other studies of exercise, it doesn’t...
thesicktimes.org
(Highly recommend reading this instead of a certain awful mainstream media Long COVID story published yesterday...)
Today @thesicktimes.org: We republished a great essay from @sunsopeningband.bsky.social, responding to last week's WIRED piece.
"Any claim that exercise still needs to be tested is not made from a position of impartiality. These claims are made from the decision to ignore the existing literature."
Last year, researchers in Ontario, Canada started recruiting participants for a Long COVID trial testing the feasibility of exercise and rehabilitation. Like many other studies of exercise, it doesn’t...
thesicktimes.org
A friend of mine in NYC with very severe ME/Long COVID urgently needs funds to support his care. His care team also could use more COVID realist volunteers.
(note: sharing in my personal capacity, not affiliated with The Sick Times!)
