📢A proposed federal rule could let the government cancel active #MECFS research mid-study when political priorities change. The public comment window closes July 13.
Take action: https://ow.ly/J5EP50ZcpV0
How to submit a public comment: https://ow.ly/Oq6150ZcpUZ
Please share!
#MEAwarenessHour
LA Times: 'What COVID is teaching doctors about the relationship between viruses and cancer'
'The rapid increase in patients suffering from long COVID supercharged research on post-viral syndromes — the complex collection of lingering symptoms...'
www.latimes.com/science/stor...
1/ A proposed federal rule could let the government cancel active ME/CFS research mid-study when political priorities change.
The public comment window closes July 13. Here's what you can do 🧵
@bendybunny.bsky.social
The FDA just extended this deadline until July 11—if you haven’t yet commented, there’s plenty of time left!
Yikes. I’ve been avoiding it completely for the last several days
The pandemic has left some evidence that viral infection may play a role in reawakening dormant cancer cells already present in a patient’s body before infection.
Loved it. It has surprised me how interested in these super extreme adventure type sports I have become since getting sick. I don’t like seeing things too close to what I used to do, but I would never BASE jump, so I’m fascinated I guess 😆 I assume you’ve seen free solo, have you seen the alpinist?
A mention of sodium phenylbutyrate (used in ALS treatment) as a potential treatment (needs tested) for the WASF3 finding in #MECFS 👀
[If you’re unfamiliar with Dr. Kaufman check out Unraveled podcast on YouTube - great info that can be trusted!]