Here for the latest research + advocacy for Long Covid, ME/CFS, dysautonomia, connective tissue disorders, etc + disability justice community. Former HCP.
Alexis M.
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A mention of sodium phenylbutyrate (used in ALS treatment) as a potential treatment (needs tested) for the WASF3 finding in #MECFS 👀
[If you’re unfamiliar with Dr. Kaufman check out Unraveled podcast on YouTube - great info that can be trusted!]
Today @thesicktimes.org: Research ethics boards urgently need training on Long COVID and ME, @spichaksimon.bsky.social argues. Better training could help prevent studies that may harm patients, like those trialing exercise. thesicktimes.org/2026/06/02/r...
@bendybunny.bsky.social
📢A proposed federal rule could let the government cancel active #MECFS research mid-study when political priorities change. The public comment window closes July 13.
Take action: https://ow.ly/J5EP50ZcpV0
How to submit a public comment: https://ow.ly/Oq6150ZcpUZ
Please share!
#MEAwarenessHour
LA Times: 'What COVID is teaching doctors about the relationship between viruses and cancer'
'The rapid increase in patients suffering from long COVID supercharged research on post-viral syndromes — the complex collection of lingering symptoms...'
www.latimes.com/science/stor...
Preprint out on a new #PEM validation tool 🧪
www.researchsquare.com/article/rs-1...
#MECFS #LongCOVID
1/ A proposed federal rule could let the government cancel active ME/CFS research mid-study when political priorities change.
The public comment window closes July 13. Here's what you can do 🧵
The FDA just extended this deadline until July 11—if you haven’t yet commented, there’s plenty of time left!
Very important systematic review paper by C. Armstrong et al.
Mapping cerebral blood flow in myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) and orthostatic intolerance: insights from a systematic review
#ME/CFS #CBF #OI
NEW & NOTEWORTHY We provide objective evidence that skeletal muscle microvascular reactivity is significantly impaired in patients with post-COVID-19 syndrome (PCS) compared with recovered controls. Using near-infrared spectroscopy, we demonstrate that this blunted microvascular reperfusion persists
Last year, researchers in Ontario, Canada started recruiting participants for a Long COVID trial testing the feasibility of exercise and rehabilitation. Like many other studies of exercise, it doesn’t...
The pandemic has left some evidence that viral infection may play a role in reawakening dormant cancer cells already present in a patient’s body before infection.
Objectives Post-exertional malaise (PEM) is increasingly understood not as a singular symptom but as a multidimensional exertion-response pattern involving diverse triggers, variable onset, and prolon...
Background Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a complex and debilitating condition with a large proportion of patients that experience orthostatic intolerance (OI). This sy...
Current evidence demonstrates that patients who suffer from long-term SARS-CoV-2 symptoms [i.e., post-COVID-19 syndrome (PCS)] often present muscle fatigue and dyspnea. This is discussed to be a resul...
Taking a much needed break from Trump madness with my new Substack post focused on science, medicine, and emerging potential therapeutics for complex illnesses like Long Covid and ME/CFS. Please enjoy, comment, subscribe.
dlkmd.substack.com/p/complex-ch...
