I was also told to take a multivitamin after being diagnosed with ME/CFS by a private specialist. But this one had ginseng!
Full video - House of Lords debate on Severe #MECFS (37 mins)
youtu.be/DGBQZwXbcMc?...
“At this point we’ve spent €36,000 on care.”
Mia’s mother and sister on the cost of severe #MECFS, the absence of approved treatments, the lack of research, and how patient demos give them hope that something will be done.
“I’m ashamed to say that my very first reaction to that diagnosis was, oh my God, I don’t want her to have that because that was a label, a stigma that you are taught in medicine.”
@binitakane.bsky.social speaking about her daughter’s diagnosis of #MECFS following Covid.
“These [Prevention of Future Deaths] reports make it clear that it’s not just a question of future improvement but a question of patient safety now. More deaths from ME must be prevented.”
Baroness Scott of Needham opening the House of Lords debate on Severe #MECFS
This follows the Department of Health and Social Care’s decision to delay consideration of a nationally commissioned specialist service for severe and very severe ME until April 2027. No such service currently exists.
