“At this point we’ve spent €36,000 on care.”
Mia’s mother and sister on the cost of severe #MECFS, the absence of approved treatments, the lack of research, and how patient demos give them hope that something will be done.
Video
Adam
“I didn’t know how to be around her without making it worse”
Mia’s sister speaks about the challenges of living with someone with severe #MECFS. Mia developed #MECFS after a Covid infection and had to move back in with her family.
