Severe ME patient currently on a 10% battery, the gas goes out more than I do. I also compile ME/CFS Awareness videos.
https://linktr.ee/abrokenbattery
Adam
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The NICE guideline describes Post-exertional malaise as:
Full segment (9 mins):
youtu.be/HHzVXSVvi4o?...
New BBC webpage on #MECFS
www.bbc.co.uk/articles/c3d...
Dr Ranj explains the four symptoms required for a diagnosis of ME/CFS: debilitating fatigue, post-exertional malaise (PEM), sleep disturbance and cognitive difficulties.
If you’ve had these symptoms for over three months, speak to your GP.
Clip from BBC Morning Live.
“ME can be invisible, it can be unpredictable, and it can be isolating. So we should do our best as public and professionals to support those people as much as we can.”
Dr Ranj on how to help people with ME/CFS
Clip from BBC Morning Live.
ME/CFS highlights from the NHS debate in Scottish parliament
youtu.be/ljOYGbJjp9c?...
Transcript
www.parliament.scot/chamber-and-...
Full debate video
www.scottishparliament.tv/meeting/scot...
Transcript
www.parliament.scot/chamber-and-...
Article:
www.libdemvoice.org/morvenmay-ma...
My first post about that Wired piece: virology.ws/2026/06/09/t...
By David Tuller, DrPH Much has already been written about Alan Levinovitz’ 7,600-word love poem to the potential healing powers of so-called “mind-body” int ...
“Perhaps the most damaging experience of all though is not simply the illness itself. It is not being believed.”
MSP Morven-May MacCallum speaking about her experience of Lyme disease and other chronic illnesses, including #MECFS, in the Scottish Parliament.
Adam
Adam
Video
Adam
David Tuller
“Chronic fatigue is not the only symptom. It is one symptom amongst so many others.”
Dr Ranj explains what ME/CFS is, why the term Chronic Fatigue Syndrome does not reflect the reality of the illness, and why many patients prefer the term ME.
Adam
Video
BBC Morning Live addresses complaints after Dr Oscar Duke said that Chronic Fatigue Syndrome was “probably the best way to describe” the illness.
Feedback from viewers outlines how it trivialises the illness, is just one symptom, and it does not reflect the reality of #MECFS.
Video
Adam
BBC Morning Live covered the new £4.75m UK government funded #MEcfs genetics study yesterday, which will sequence 6,000 DNA samples as part of the wider DecodeME project.
Unfortunately, Dr Oscar Duke said Chronic Fatigue Syndrome is “probably the best way to describe” the illness.
Video
Adam
“If I went to an appointment and came away without one of us being in tears or absolutely furious, that was not too bad.”
MSP Helen McDade speaking about her family’s experience of #MECFS in the Scottish Parliament.
Video
“Twenty years on, I came back to campaigning for sufferers of ME only to find that almost nothing had changed.”
MSP Helen McDade speaking about #MECFS in the NHS debate in Scottish Parliament.
Video
Video
Dr Ranj explains the four symptoms required for a diagnosis of ME/CFS: debilitating fatigue, post-exertional malaise (PEM), sleep disturbance and cognitive difficulties.
If you’ve had these symptoms for over three months, speak to your GP.
Clip from BBC Morning Live.
Adam
Adam
“Perhaps the most damaging experience of all though is not simply the illness itself. It is not being believed.”
MSP Morven-May MacCallum speaking about her experience of Lyme disease and other chronic illnesses, including #MECFS, in the Scottish Parliament.
Video
“If I went to an appointment and came away without one of us being in tears or absolutely furious, that was not too bad.”
MSP Helen McDade speaking about her family’s experience of #MECFS in the Scottish Parliament.
Adam
Video
Video
Adam
“Chronic fatigue is not the only symptom. It is one symptom amongst so many others.”
Dr Ranj explains what ME/CFS is, why the term Chronic Fatigue Syndrome does not reflect the reality of the illness, and why many patients prefer the term ME.
Adam
Video
“Perhaps the most damaging experience of all though is not simply the illness itself. It is not being believed.”
MSP Morven-May MacCallum speaking about her experience of Lyme disease and other chronic illnesses, including #MECFS, in the Scottish Parliament.
Adam
Video
BBC Morning Live addresses complaints after Dr Oscar Duke said that Chronic Fatigue Syndrome was “probably the best way to describe” the illness.
Feedback from viewers outlines how it trivialises the illness, is just one symptom, and it does not reflect the reality of #MECFS.
Adam
Adam
Video
BBC Morning Live covered the new £4.75m UK government funded #MEcfs genetics study yesterday, which will sequence 6,000 DNA samples as part of the wider DecodeME project.
Unfortunately, Dr Oscar Duke said Chronic Fatigue Syndrome is “probably the best way to describe” the illness.
