Clip from German TV. A #LongCovid patient is screened for Post-Exertional Malaise. Clinicians conclude she does not “deteriorate dramatically after very little physical exertion” and recommend a Post-Covid rehabilitation programme.
Very brief mention of the ear seeds controversy during a discussion about Stephen Bartlett on The Rest Is Entertainment.
This relates to Stephen Bartlett’s investment in an ear seeds business whose founder claimed they aided her recovery from ME/CFS.
My first post about that Wired piece: virology.ws/2026/06/09/t...
Full segment (9 mins):
youtu.be/HHzVXSVvi4o?...
New BBC webpage on #MECFS
www.bbc.co.uk/articles/c3d...
“Twenty years on, I came back to campaigning for sufferers of ME only to find that almost nothing had changed.”
MSP Helen McDade speaking about #MECFS in the NHS debate in Scottish Parliament.
Good to see patients being screened for PEM. I’d be interested to know more about how patients are assessed. Subtitles by Fiona Hart.
Original video - Post Covid: Help from the Exercise Doctors - 16 Sept 2025
www.ndr.de/fernsehen/se...
YouTube
youtu.be/tI80VQCMt04?...
ITV’s This Morning covered the backlash following the episode of Dragons Den
youtu.be/2zp9HQVgdRI?...
More info:
me-pedia.org/wiki/Acu_Seeds
Podcast:
youtu.be/_uYEPVxkw2s?...
The NICE guideline describes Post-exertional malaise as:
youtu.be
By David Tuller, DrPH Much has already been written about Alan Levinovitz’ 7,600-word love poem to the potential healing powers of so-called “mind-body” int ...
Dr Ranj explains the four symptoms required for a diagnosis of ME/CFS: debilitating fatigue, post-exertional malaise (PEM), sleep disturbance and cognitive difficulties.
If you’ve had these symptoms for over three months, speak to your GP.
Clip from BBC Morning Live.
“ME can be invisible, it can be unpredictable, and it can be isolating. So we should do our best as public and professionals to support those people as much as we can.”
Dr Ranj on how to help people with ME/CFS
Clip from BBC Morning Live.
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Dr Ranj explains the four symptoms required for a diagnosis of ME/CFS: debilitating fatigue, post-exertional malaise (PEM), sleep disturbance and cognitive difficulties.
If you’ve had these symptoms for over three months, speak to your GP.
Clip from BBC Morning Live.
“If I went to an appointment and came away without one of us being in tears or absolutely furious, that was not too bad.”
MSP Helen McDade speaking about her family’s experience of #MECFS in the Scottish Parliament.
“Chronic fatigue is not the only symptom. It is one symptom amongst so many others.”
Dr Ranj explains what ME/CFS is, why the term Chronic Fatigue Syndrome does not reflect the reality of the illness, and why many patients prefer the term ME.
“Chronic fatigue is not the only symptom. It is one symptom amongst so many others.”
Dr Ranj explains what ME/CFS is, why the term Chronic Fatigue Syndrome does not reflect the reality of the illness, and why many patients prefer the term ME.
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“Perhaps the most damaging experience of all though is not simply the illness itself. It is not being believed.”
MSP Morven-May MacCallum speaking about her experience of Lyme disease and other chronic illnesses, including #MECFS, in the Scottish Parliament.
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BBC Morning Live addresses complaints after Dr Oscar Duke said that Chronic Fatigue Syndrome was “probably the best way to describe” the illness.
Feedback from viewers outlines how it trivialises the illness, is just one symptom, and it does not reflect the reality of #MECFS.
BBC Morning Live addresses complaints after Dr Oscar Duke said that Chronic Fatigue Syndrome was “probably the best way to describe” the illness.
Feedback from viewers outlines how it trivialises the illness, is just one symptom, and it does not reflect the reality of #MECFS.
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Adam
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BBC Morning Live covered the new £4.75m UK government funded #MEcfs genetics study yesterday, which will sequence 6,000 DNA samples as part of the wider DecodeME project.
Unfortunately, Dr Oscar Duke said Chronic Fatigue Syndrome is “probably the best way to describe” the illness.
BBC Morning Live covered the new £4.75m UK government funded #MEcfs genetics study yesterday, which will sequence 6,000 DNA samples as part of the wider DecodeME project.
Unfortunately, Dr Oscar Duke said Chronic Fatigue Syndrome is “probably the best way to describe” the illness.
