I discovered that the Tapestry Tool, which has great modules on equity, diversity, and inclusion in patient partnership, has an updated link. I love these modules and recommend them whenever I get the chance.
I'm excited to see that there's new content coming, too!
CAMH is recruiting researchers and people who've previously been a patient partner in research for a study of the impact of patient engagement: www.camh.ca/en/science-a...
#ParticipateInResearch
www.healthresearchbc.ca
The Citizen Science project allows the public to participate in health research.
How do you see AI fitting into the future of PPI storytelling? And what safeguards or opportunities do you think matter most?
Read the latest IPPIN blog post from Patrick Toland - 'Patient Voices in the Age of AI: Opportunity or Visibility Theft?'
intppinetwork.wixsite.com/ippin/post/p...
www.camh.ca
We are testing a new tool that measures the impact of engaging people with lived and living experience and caregivers in research.
Here's my latest contribution to the @nytimes "Lost Science" series. Brenna Henn's sweeping study of African genetics has been frozen. Gift link: nyti.ms/3Ypmm1A
SKIP is growing! We're #hiring a Director of Strategy & Operations to help lead strategic growth & advance our mission to improve children's pain management. Join us in the Admin Centre on the Dalhousie Campus in #Halifax - Apply today! tinyurl.com/ykwmeztz #ItDoesntHaveToHurt
International Patient and Public Involvement Network
Solutions for Kids in Pain
Jillian C. Banfield
Iva Cheung 🍗
Carl Zimmer
McGill researchers are seeking people 18+ who've received care from a rheumatologist in Canada for rheumatoid arthritis to complete a 15-minute survey.
mcgillecp.ca1.qualtrics.com/jfe/form/SV_...
#ParticipateInResearch
Begin your journey to becoming an active patient advocate - sign up now📩
Through online modules and educator-monitored forums, you will learn best practice advocacy skills and how to use them in context.
Starts 18 May on FutureLearn (Free to join)
➡️bit.ly/45MR73Y
#PatientVoice #FLPatientPower
Our free Patient Advocacy in Genomics online course is back! 🖥️
Starting 18 May on FutureLearn with live, educator-monitored forums.
Build impactful advocacy skills, learn from world-class experts, and connect with a global community.
Enrol now 👇 bit.ly/45MR73Y
#PatientVoice #FLPatientPower
An international team of patient partners, including @dawnrichards.bsky.social, is studying patient partners' experiences with authorship of peer-reviewed publications. If you have such experience, consider completing this survey! survey.alchemer.eu/s3/90907829/... #ParticipateInResearch
On April 15, I'm giving a talk for the Centre for Genomics Enhanced Medicine titled "How patient partnership is transforming genetics research". Looking forward to sharing what we do at the Institute of Genetics!
Join us for a CGEM Seminar on April 15th featuring Dr. Jillian Banfield - don't miss out!
