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Patient partnership in research. Team Lead, #PatientPartnership for Institute of Genetics, Canada. #RareDisease. Disabled. Opinions mine & not that of my employer. She/her

Jillian C. Banfield

McGill researchers are seeking people 18+ who've received care from a rheumatologist in Canada for rheumatoid arthritis to complete a 15-minute survey. mcgillecp.ca1.qualtrics.com/jfe/form/SV_... #ParticipateInResearch

An international team of patient partners, including @dawnrichards.bsky.social, is studying patient partners' experiences with authorship of peer-reviewed publications. If you have such experience, consider completing this survey! survey.alchemer.eu/s3/90907829/... #ParticipateInResearch

Here's my latest contribution to the @nytimes "Lost Science" series. Brenna Henn's sweeping study of African genetics has been frozen. Gift link: nyti.ms/3Ypmm1A

How do you see AI fitting into the future of PPI storytelling? And what safeguards or opportunities do you think matter most? Read the latest IPPIN blog post from Patrick Toland - 'Patient Voices in the Age of AI: Opportunity or Visibility Theft?' intppinetwork.wixsite.com/ippin/post/p...

I discovered that the Tapestry Tool, which has great modules on equity, diversity, and inclusion in patient partnership, has an updated link. I love these modules and recommend them whenever I get the chance. I'm excited to see that there's new content coming, too!

On April 15, I'm giving a talk for the Centre for Genomics Enhanced Medicine titled "How patient partnership is transforming genetics research". Looking forward to sharing what we do at the Institute of Genetics!

Our free Patient Advocacy in Genomics online course is back! 🖥️ Starting 18 May on FutureLearn with live, educator-monitored forums. Build impactful advocacy skills, learn from world-class experts, and connect with a global community. Enrol now 👇 bit.ly/45MR73Y #PatientVoice #FLPatientPower

SKIP is growing! We're #hiring a Director of Strategy & Operations to help lead strategic growth & advance our mission to improve children's pain management. Join us in the Admin Centre on the Dalhousie Campus in #Halifax - Apply today! tinyurl.com/ykwmeztz #ItDoesntHaveToHurt

Begin your journey to becoming an active patient advocate - sign up now📩 Through online modules and educator-monitored forums, you will learn best practice advocacy skills and how to use them in context. Starts 18 May on FutureLearn (Free to join) ➡️bit.ly/45MR73Y #PatientVoice #FLPatientPower

CAMH is recruiting researchers and people who've previously been a patient partner in research for a study of the impact of patient engagement: www.camh.ca/en/science-a... #ParticipateInResearch