//
sign in
Profile
by @danabra.mov
Profile
by @dansshadow.bsky.social
Profile
by @jimpick.com
AviHandle
by @danabra.mov
AviHandle
by @dansshadow.bsky.social
AviHandle
by @katherine.computer
EventsList
by @katherine.computer
ProfileHeader
by @dansshadow.bsky.social
ProfileHeader
by @danabra.mov
ProfileMedia
by @danabra.mov
ProfilePlays
by @danabra.mov
ProfilePosts
by @danabra.mov
ProfilePosts
by @dansshadow.bsky.social
ProfileReplies
by @danabra.mov
Record
by @atsui.org
Skircle
by @danabra.mov
StreamPlacePlaylist
by @katherine.computer
+ new component
ProfilePosts









Loading...
Raise your hand if you have Iatrogenic PTSD. 🙋‍♀️ I now have to take Xanax to go to any medical appointment, or my blood pressure shoots up to stroke range and the doctors freak out. My BP is otherwise normal, but I take two BP meds due to this issue.
26d
Andrea Is Sick of Long Covid
26d
I read @neurologistmom.bsky.social substack post this morning in my email and it made me feel so seen. The cPTSD involved in seeking treatment is unacceptable.
Dormant herpes viruses seem increasingly prone to causing serious problems, and in some cases, it may be safer to start valacyclovir for a few days as a precaution. We are simply not what we used to be anymore.
Doc: “A kid can tell you, ‘I can’t breathe, I can’t breathe.’ How do I know she’s not having an anxiety attack?” Kid: “Mom, it’s not anxiety.” Mom: “I know, baby. I know.” Beata did everything she could for her child, but she couldn’t make it. 😔 Please watch Take Care of Maya. #MedicalHarm
3d
6d
"Why does every appointment eventually turn into questioning the only people who truly understand my illness, have sacrificed everything for me, & whom I feel incredibly lucky to have as my parents?” -
18d
Happy Mother’s Day to all mothers, especially those whose children are severely ill and who witness their child’s suffering 24/7, pulling them back from the brink of death countless times while living constantly on the edge…
Yesterday, during a conversation with my dentist friend she told me that one of her patients developed encephalitis after a routine dental procedure last month It was the first such case she had seen in her 30 years of practice I told her that our immune systems are not what they used to be anymore⬇️
6d
1mo
Ginger Billie
Today my daughter turned 18. I wrote this article with a sense of relief, while still carrying all the trauma on my back. "When Doctors Suspect the Parent Instead of the Disease: Parents Silenced Under Threat" open.substack.com/pub/neurolog...
1/ "Many chronically ill patients no longer fear only their disease. They fear the healthcare system itself after years of dismissal, disbelief, humiliation, & abandonment" - @neurologistmom.bsky.social 🙏 open.substack.com/pub/neurolog...
“Iatrogenic PTSD: When Healthcare Becomes the Source of Trauma” This is the term I suggest for describing what many chronic complex disease patients develop after repeated dismissal, invalidation, and gaslighting by healthcare professionals. open.substack.com/pub/neurolog...
Neurologist Mom
Neurologist Mom
18d
26d
26d
Neurologist Mom
Neurologist Mom
Tania J. Spencer
Neurologist Mom
Tania J. Spencer
Neurologist Mom
“Iatrogenic PTSD: When Healthcare Becomes the Source of Trauma” This is the term I suggest for describing what many chronic complex disease patients develop after repeated dismissal, invalidation, and gaslighting by healthcare professionals. open.substack.com/pub/neurolog...
26d
Neurologist Mom