"Why does every appointment eventually turn into questioning the only people who truly understand my illness, have sacrificed everything for me, & whom I feel incredibly lucky to have as my parents?” -
Tania J. Spencer
Today my daughter turned 18. I wrote this article with a sense of relief, while still carrying all the trauma on my back.
"When Doctors Suspect the Parent Instead of the Disease: Parents Silenced Under Threat"
open.substack.com/pub/neurolog...
How parents of medically fragile children learn to stay silent, “cooperative,” and afraid while trying to protect their child from a healthcare system that increasingly sees them as the problem instea...
