Great discussion by my colleague @kaytesb.bsky.social on what actually happens to direct-to-consumer genetic testing data.
Brian Zikmund-Fisher
Many who undergo direct-to-consumer genetic testing don’t realize that their data are being licensed to pharmaceutical and biotech companies.
JAMA Viewpoint authors @kaytesb.bsky.social and Anya E. R. Prince discuss this gap between consumer expectations and what is being done.
ja.ma/40uGL7q