International Federation advocating for #LongCOVID research and prevention | Together, we rise! 💪😷
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Long COVID Rise Up
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Trial design and the list of sites involved here :
clinicaltrials.gov/study/NCT064...
2) can harm in very diverse ways.
Notably,
This trial appears to involve actors connected to the framework promoted above, and is positioned for rapid integration into patient care pathways, « Scalability was a deliberate design consideration»
:
www.medrxiv.org/content/10.6...
The concerns we raised in our letter about LC are not merely theoretical.
Recent trial approach continue to divide LC patients into simplistic categories and make assumptions about rehabilitation safety when patients have no PEM, when we know that
1) rehab is not a treatment for LC
and
of the disease, and be developed with those living with it - not by selectively acknowledging a part of our reality, or narrowing the diverse ways LC can be severe.
Moreover, the guide is very limited not only for LC but also for other conditions that are supposed to be included in this document.
« Compassionate care » is not an adapted approach to LC.
We need proactive care:
appropriate testing,
specialist follow-up,
prevention of complications,
and protection from reinfection through clean air, ventilation and masking in healthcare settings.
LC guidelines must reflect the full spectrum
