📢What's new on the JLA website?
In our latest news article, find out how charities have helped to shape research priorities through James Lind Alliance Priority Setting Partnerships.
Read the article:
The Developmental Coordination Disorder (DCD) PSP recently shared the top priorities for future research. These priorities were identified by people living with DCD, their families and the professionals who support them.
📄Find out more about the PSP and the research priorities: buff.ly/IIDVidJ
Are you or someone you love affected by neuroendocrine cancer? Do you work with people who are affected by neuroendocrine cancer?
Choose the questions that you think future research needs to answer about neuroendocrine cancer. Take part in the survey:
💭What research topics should be prioritised to improve care and rehabilitation during sick leave for stress-related mental illness?
Patients, family members and healthcare professionals based in Sweden can share their views here: buff.ly/utNDh8Q
📢The Thyroid Disease PSP needs your help to identify priorities for future research.
The Initial survey is open. If you have thyroid disease, or care for someone affected, share what maters: buff.ly/CehcFZQ
Learn more about the PSP: buff.ly/VlmMyOn
Do you have questions about female fertility preservation that you would like research to answer?
Whether you've considered fertility preservation because of cancer treatment, a medical condition affecting fertility, or personal reasons, your views matter.
Share your thoughts: buff.ly/FXZNbhD
Are you based in Zambia? Have you experienced high blood pressure in pregnancy, or cared for someone who has?
Share the questions, issues or topics that matter most to you about high blood pressure in pregnancy. Your ideas will help to guide researchers.
Have your say: buff.ly/b2puFvZ
The Traumatic Brachial Plexus Injuries (TBPI) PSP worked with patients, carers and healthcare professionals to identify key priorities for future research on TBPI.
Learn more about the PSP and the top research priorities here:
The Global Perianal Crohn’s Disease PSP worked with patients, carers and clinicians internationally to identify the top unanswered questions about diagnosis, treatment, surgery and patient care pathways.
📄Find out more in the PSP's journal article:
The Child and Adolescent Cancer (Australia) PSP brought together young people affected by cancer, families, carers and healthcare professionals to identify the top unanswered questions in childhood and adolescent cancer care in Australia.
📄Find out more in the journal article:
How Charities Have Helped Shape Research Priorities Through JLA PSPs
Introduction: Traumatic brachial plexus injuries (TBPI) are life-changing and can lead to permanent changes in function and pain within the arm and hand. Histor...
AbstractBackground and aims. Perianal Crohn’s disease (pCD) is a debilitating condition with a prevalence of approximately 20% in patients within 10 years
buff.ly
Patient and public involvement is at the core of our chosen methodology and central to our Priority Setting Partnership from inception. We included childhood cancer survivors, caregivers, health…
