⏳ Almost time! Next week, Daria Julkowska will be at #WODCBoston 🇺🇸 as keynote speaker in two sessions 👀
🔗 Explore the topics: https://loom.ly/ilxeQfk
#RareDiseases #ERDERA
🌍 At a pivotal moment for Europe, ERDERA gathered NMGs, EU stakeholders & global partners in Sofia with one goal: stronger alignment to accelerate research & impact.
🎥 Watch the insights: https://loom.ly/y2IkYOY
👉 https://loom.ly/K2bkDP8
🚨 ERDERA Clinical Trial Call 2026 pre‑announcement is live
Planning to apply? Start preparing now 👉 https://loom.ly/x0LNqMY
📅 Launch: 1 July 2026
🎓 Join the webinar (6 July): https://loom.ly/Zey54D0
🔁 Share with your network
#ERDERA #RareDiseases #ClinicalTrials
That’s a wrap on the 2026 EURORDIS Open Academy x ERDERA Schools’ in-person training week!
👏 Congratulations to all participants on completing their trainings, we look forward to welcoming you to our active alumni community!
🚀 Want to lead the way in #RareDisease research?
Subscribe to #ERDERA’s newsletter! 📩
✅ Big news first
✅ Expert tips & tools
✅ Breakthroughs that matter
✅ Community highlights
Subscribe at 👉 https://loom.ly/NxMGydc
How do we move from rare disease dialogue to real EU action? 🤔
At #ECRD2026, the community pushed for a stronger, coordinated response, with the upcoming European Blueprint at its core.
👉 Find out more about the key reflections from the event: https://loom.ly/B6eOnrw
#RareDiseases #ERDERA
What is ERDERA, and why does it matter? 🤔
30 million people in Europe live with a rare disease. Yet most still lack a diagnosis or treatment. So what is ERDERA doing about it?
Watch the short video: https://loom.ly/c9rVqRA 🔁
#ERDERA #RareDiseases @ec.europa.eu
From hospitals to genomic research centres, participants at the #EURORDISOpenAcademy x ERDERA Schools’ training week are experiencing rare disease #research and care in #action. 🏥
Stay tuned to follow their journey throughout the week!🚀
@erdera.bsky.social
In a new article, Marta Campabadal reflects on the first #OpenAcademy x ERDERA Mentoring Programme pilot and the power of peer support in the rare disease community.
📌 Read more and become a mentor: https://go.eurordis.org/blogstaff
Video
Video
🌍 How are clinical research networks advancing rare disease research worldwide?
Highlights from the 2nd CRN Conference are now live 👇
📄 Access the event report: https://loom.ly/kmtHQKc
#RareDiseases #ClinicalResearch
Key takeaways from ERDERA’s first in-person meeting uniting countries on rare disease research.
