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Advancing prevention, diagnosis and treatment research for the 30 million people living with a rare disease in Europe. 🔗 erdera.org Co-funded by European Union's #HorizonEU Research & Innovation programme. Views expressed are of authors only.

ERDERA

🌍 How are clinical research networks advancing rare disease research worldwide? Highlights from the 2nd CRN Conference are now live 👇 📄 Access the event report: https://loom.ly/kmtHQKc #RareDiseases #ClinicalResearch

🌍 At a pivotal moment for Europe, ERDERA gathered NMGs, EU stakeholders & global partners in Sofia with one goal: stronger alignment to accelerate research & impact. 🎥 Watch the insights: https://loom.ly/y2IkYOY 👉 https://loom.ly/K2bkDP8

⏳ Almost time! Next week, Daria Julkowska will be at #WODCBoston 🇺🇸 as keynote speaker in two sessions 👀 🔗 Explore the topics: https://loom.ly/ilxeQfk #RareDiseases #ERDERA

🚨 ERDERA Clinical Trial Call 2026 pre‑announcement is live Planning to apply? Start preparing now 👉 https://loom.ly/x0LNqMY 📅 Launch: 1 July 2026 🎓 Join the webinar (6 July): https://loom.ly/Zey54D0 🔁 Share with your network #ERDERA #RareDiseases #ClinicalTrials

🚀 Want to lead the way in #RareDisease research? Subscribe to #ERDERA’s newsletter! 📩 ✅ Big news first ✅ Expert tips & tools ✅ Breakthroughs that matter ✅ Community highlights Subscribe at 👉 https://loom.ly/NxMGydc

What is ERDERA, and why does it matter? 🤔 30 million people in Europe live with a rare disease. Yet most still lack a diagnosis or treatment. So what is ERDERA doing about it? Watch the short video: https://loom.ly/c9rVqRA 🔁 #ERDERA #RareDiseases @ec.europa.eu

How do we move from rare disease dialogue to real EU action? 🤔 At #ECRD2026, the community pushed for a stronger, coordinated response, with the upcoming European Blueprint at its core. 👉 Find out more about the key reflections from the event: https://loom.ly/B6eOnrw #RareDiseases #ERDERA

From hospitals to genomic research centres, participants at the #EURORDISOpenAcademy x ERDERA Schools’ training week are experiencing rare disease #research and care in #action. 🏥 Stay tuned to follow their journey throughout the week!🚀 @erdera.bsky.social

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That’s a wrap on the 2026 EURORDIS Open Academy x ERDERA Schools’ in-person training week! 👏 Congratulations to all participants on completing their trainings, we look forward to welcoming you to our active alumni community!

In a new article, Marta Campabadal reflects on the first #OpenAcademy x ERDERA Mentoring Programme pilot and the power of peer support in the rare disease community. 📌 Read more and become a mentor: https://go.eurordis.org/blogstaff

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ERDERA

EURORDIS-Rare Diseases Europe

Key takeaways from ERDERA’s first in-person meeting uniting countries on rare disease research.

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Aligning Countries for Rare Disease Research | ERDERA meeting in Sofia

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30 million people in Europe live with a rare disease. Yet most still lack a diagnosis or treatment. So what is ERDERA doing about it?

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Understanding ERDERA: Europe’s alliance for rare disease research