Some people go through clinical trials and move on.
Others stay with what they saw, what they lived, and what they believe needs to change.
Two years into Psychedelic Lived Experiences, this clip reflects the heart of why this work exists.
#psychedelics #clinicaltrials #livedexperienceexpertise
To everyone who has participated in clinical trials and to those working to improve them: thank you.
Thank you, Ron. We need to pay more attention to the participant experience during the screening process and find better ways to minimize the extra burden. Researchers need to listen more to trial participants and apply their insights to the next iteration of a questionnaire or screening process.
Today is International Clinical Trials Day.
Clinical research depends on participants, not just protocols.
Beyond data, they contribute time, trust, vulnerability and lived insight. To all clinical trial participants and those working to improve them: thank you.
#ClinicalTrialsDay
A lot of what matters most only becomes visible when you actually listen to what trial participants lived through.
The language we use around lived experience matters because it shapes what gets taken seriously in research and practice.
What Participant Screening Really Felt Like in an MDMA Therapy for PTSD Trial
Ron reflects on the emotional and physical toll of screening and clinical questionnaires, even when the goal is to understand and validate what someone has been through.
#MDMATherapy #PTSD #Psychedelics #MDMA
What participants live through is often treated as anecdotal, when in reality it can reveal exactly what formal systems fail to capture.
That is not noise.
That is part of the signal.
#PsychedelicTherapy #PsychedelicResearch #PatientSafety #LivedExperience #ClinicalTrials
The Philosophical Foundations of Lived and Living Experience in Psychedelic Therapy
Meet @tehseennoorani.bsky.social, PhD, social scientist and facilitator of the Reimagining Psychedelic Trials working group.
#PsychedelicTherapy #PsychedelicResearch #Psychedelics #LivedExperience