From our friends at @solveme.bsky.social!
Take action today by submitting a comment and contacting Congress. Thanks to Solve M.E. for organizing this response on this critical issue.
#MEAction Network
1/ A proposed federal rule could let the government cancel active ME/CFS research mid-study when political priorities change.
The public comment window closes July 13. Here's what you can do 🧵
Join us for a community meeting on Sunday, June 14th at 3:00pm ET to hear about the next steps #MEAction is taking in US advocacy, and what steps you can take to be part of these efforts. https://ow.ly/p1jM50ZablP
#PwME #MillionsMissing #FrailAndFurious #MyalgicEncephalomyelitis #MECFS
#MEAction Network
Solve M.E.
ME/CFS community! Please, if you are able, come to the community meeting held by #MEAction on tomorrow - Sunday, June 14 at 3 PM ET. We are facing a changed advocacy environment, and to make any progress, we have to forge new paths and move forward together. Come tomorrow and see where we stand.
Miranda shares her experience as a #pwME & shares her advocacy within the disability and unhoused community at #MillionsMissing. Miranda goes on to explain that #Medicaid is the main pathway to get home care and home care is the main pathway to safety.
https://youtu.be/sn6RWKmnT3Q
Jaime Seltzer It's ME(Jaime), Scientific Director at #MEAction, makes a powerful case for fighting against Medicaid work requirements that imperil people with ME at this year's #MillionsMissing. Full speech: https://youtu.be/VGmix8XT14s
#MECFS #Medicaid #disability #FrailAndFurious
#MEAction Network
#MEAction Network
Wilhelmina Jenkins
Karen Gordon bravely took part in our video that lit up London for the very severely ill and now she needs your help.
