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5/5 But I built it also for others. And maybe that's enough. Building it felt like agency. Like pushing back. That's what I'm looking for in every project I'll share here. More to come.
4/5 Here's the honest part: I barely used it myself. I'm part of a clinical trial. The measurements came constantly. At some point, all that tracking just pulled me down. Numbers that remind you, over and over, what you're losing.
1/5 ALS takes a lot. But it doesn't take curiosity. A new thread: how I stay motivated – through projects that are meaningful, or simply fun 🧵