ROS1ders UK is the latest charity to join Cancer52.Â
ROS1ders UK support people affected by ROS1-positive cancer. They bring patients together, share practical information, raise awareness, and speak up for better testing, treatment access, and research.
See: ros1ders-cancer.uk
💬 Share your views and help to strengthen the voices of people affected by rare and less common cancers, including leukaemia.
Fill in @cancer52org.bsky.social's patient survey and help to shape future policy work to improve diagnosis and access to treatments: www.surveymonkey.com/r/c52patient...
Real change starts with real experiences.
Have you been affected by a rare and less common cancer (all cancers except breast, bowel, lung, or prostate) either as a patient or a carer?
Please take our anonymous online survey to share your experience: bit.ly/43pRy33
We are pleased to welcome Cancer52’s newest member, The Joshua Tree.
The charity provides bespoke emotional health and wellbeing support to families affected by childhood cancer across the UK.
Learn more: thejoshuatree.org.uk
Cancer52 has a new member!
Cahonas Scotland supports men with testicular cancer and their families, from diagnosis through treatment and beyond. Through education programmes, awareness campaigns, and peer support.
Read more: www.cahonasscotland.org
Great to meet with Minister @sharonhodgsonmp.bsky.social alongside fellow cancer charities yesterday. Topics discussed included implementation of the National Cancer Plan & Rare Cancers Act, importance of reducing late diagnosis, and the distinct challenges faced in rare & less common cancers.
Welcome to Cancer52's newest member; Lynch Syndrome UK, a national, patient-led charity committed to improving awareness, advancing equitable access to genetic testing, and supporting individuals and families affected by hereditary cancer risk.
Learn more: www.lynch-syndrome-uk.org
EGFR Positive UK has joined Cancer52!
EGFR Positive UK provide trusted information, peer support and advocacy for EGFR positive lung cancer. Raise awareness of biomarker testing and targeted treatments while promoting equitable access to personalised care.
Read more: www.egfrpositive.org.uk
Thank you to our excellent speakers and panellists for sharing valuable insights at the #BigCancer52Conversation, aligned with the commitments in the new Cancer Plan.
It was fantastic to come together with a shared goal - improving outcomes for everyone affected by rare and less common cancers