The longest established UK charity working on Lyme disease and associated tick-borne diseases. Accredited to the PIF Tick UK quality mark for trustworthy information. www.lymediseaseaction.org.uk
Lyme Disease Action
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2 trustees back from #NordTick2026, now have to write up a summary. Many interesting talks & posters. Always good to meet researchers, clinicians & patient orgs we only see at international conferences. Notable how #TBE & #Neoehrlichia are growing topics yet to be major problem in UK.
If you know you get #ticks attaching to you and you need some protection, why not try a repellent. Plant based, effective and easy to use. www.lymediseaseaction.org.uk/what-we-are-...
Treating patients as partners, to contribute a new important perspective, is much more effective than simply using patients to tick a box. But how to make the change?!
Thankyou @adamjamesdance.bsky.social for questioning Dept of Health re cases of #Lymedisease in #Somerset. NB their answer (cases not up over the last 7 years) is misleading as that only applies to what is classified as lab confirmed acute cases. www.theyworkforyou.com/wrans/?id=20...
Printed poster from brill @SciencePosters: easy to pack for #NordTick 2026 next week. Hope for good discussions to inform UK research which seems not to respond to need #ticks - yes; #Lyme -not apparent @hpruezi.bsky.social Can Europe help? @francelyme.bsky.social @tekenbeetziekten.bsky.social
However, the group classified by UKHSA as "Lyme longstanding" has been rising. Some will not be current infection but the vast majority were late diagnosed and therefore have had a more difficult recovery. They may still be suffering. More discussion here www.lymediseaseaction.org.uk/latest-news/...
New figures on #Lyme disease cases highlights the rise in "longstanding" Lyme. @UKHSA says may be previous disease, not active. But these people had test because of illness. Want #PIFTick accredited info on this? www.lymediseaseaction.org.uk/about-lyme/c... @theguardian.com
People diagnosed without a blood test are not reported so we have no idea how many there are. If they had the typical rash, they don't need a blood test, so they should have had early treatment and (if treatment was correct) one hopes a quick recovery.
Highest no of cases in the SW and SE, as in previous years. Awareness is needed as we move to peak tick activity. @forestresearchuk.bsky.social @royalforestrysoc.bsky.social @dartmoorac.bsky.social @newforestcommoner.bsky.social
Lyme disease: what #pharmacists need to know when someone asks them about "this funny rash". www.thepharmacist.co.uk/clinical/vac... @pcpa-uk.bsky.social @drzoewaller.bsky.social @clairewynn.bsky.social
Lyme Disease Action
Lyme Disease Action
Lyme Disease Action
Lyme disease is the most common vector-borne disease in the northern hemisphere, yet it remains frequently missed or misdiagnosed...
Patient Partnership Week is back for 2026! Together patients, professionals and policymakers will explore a simple but powerful idea: healthcare works best when patients are treated as partners.
Take a look at our events and sign up, more to follow! #PPW2026
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πΏπ¦ Our first One Health surveillance report of vector-borne diseases (VBD) in England shows:
π Lyme disease remains the most common VBD
π¦ Emerging mosquito threats are increasing across Europe
While risk to the public remains low, taking precautions matters
Read full report https://bit.ly/3Py2hFy