Professional in and passionate about Patient and Public Involvement in health care research. Working across institutions: University College London, University College London Hospitals and University of Oxford. Views are mine.
Linda von Neree
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Using clinical prediction models to predict illness and make decisions can lead to a worsening in existing inequities. Using ‘subgroup net benefit’ looks beyond the algorithms to add clinical & social context.
Full paper: ths.im/3MtKwFL
THIS summary: ths.im/4tV65zY
Mindful March calendar from Action for Happiness
Reposting this really helpful thread for new people joining BlueSky.
bsky.app/profile/tris...
Please note esp tip 3: "BE A PERSON. Put up a photo. Put something in your bio. Make the place look friendly. Give people a reason to follow you back".
Also post/engage. Then we know you're not a bot! 🤖
My book 'Suspended Disbelief: Reflections on the Holocaust' is still available to buy, including from me directly if you want a signed copy. julianharrison.wordpress.com/the-author/
📣 If you are interested in #PatientInvolvement #PublicEngagement 💪 in #data #research 🕵️👥🔬this new #publication might be for you 🤩
➡️ Tasks how patient and public members can be involved in research using health information: A conversation starter
onlinelibrary.wiley.com/doi/10.1111/...
Do share! 🙏
Worth watching m.youtube.com/watch?v=0y1n... Feeling #sick about #politics in this #world
🚨 Just out: This special edition newsletter celebrates #researchers and #patient and public members working together on Plain English Summaries to make #research more accessible 🎉
👉More at sway.cloud.microsoft/bs01ner3kySZ...
#PlainEnglish #ResearchAccessibility #PatientInvolvement #HealthResearch
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Great article from @lynnlaidlaw.bsky.social looking at the gaps between the rhetoric and reality of 'patient and public involvement'. With important questions about the extent to which claims of involvement are meaningful. Page 4 here: pexlib.net?246078 #PatientExperience
Today is #TimeToTalk Day, a day encouraging conversation about mental health. Last year, we outlined 10 early actions the government can take to improve NHS working conditions, and specifically staff wellbeing. Find out more 👉 www.kingsfund.org.uk/insight-and-...
Suspended Disbelief – Reflections on the Holocaust BOOK IS NOW OUT! Available on Amazon or on 30 Degrees South UK The Holocaust. The darkest chapter in the history of humankind. A pivotal per…
Background Patient and public involvement and engagement (PPIE) is essential throughout the research cycle, but a one-size-fits-all approach does not suit all study types. Health data research prese...
A spotlight on outstanding science made accessible — from across the five Blood and Transplant Research Units (BTRUs), in partnership with the National Institute for Health and Care Research (NIHR) an
THIS Institute (The Healthcare Improvement Studies Institute)
What actions can the new government take to improve working conditions and lay the foundations for addressing chronic staff shortages and increasing NHS retention and productivity?
Thread for those new to BlueSky. First of all, welcome. It feels like a safer space, doesn’t it? But also perhaps a bit disorienting initially? Here’s some tips for getting your bearings.
