📃 New newsletter and commentary written by Catherine (Kasia) Heith from BC Children's Hospital: us15.campaign-archive.com?u=9c9dab5382...
Have you read the latest issue of TRENDS in Pediatric and Palliative Care?
In Issue 03, Andrea Cuviello explores Bertaud’s 2025 paper on hope pluralism, the capacity to hold multiple hopes at once, and how this perspective can better support families navigating uncertainty at the end of life.
TRENDS 2026 Issue 05 is out now! James A. Feinstein comments on the impact of sleep disorders of children with severe medical complexity on their caregivers' sleep. Read his commentary and find related citations here: pediatricpalliative.com/trends-2026-... #PedPC #complexcare
This podcast helped me enormously when I began as a parent partner. (Start on episode 1!) Jennifer and Emily have now moved onto knowledge translation recordings, which are a great resource if you are new to research and prefer a conversational introduction to papers.
mattersofengagement.com
All it took was one sleepless night being a human pillow, propping my congested kiddo up so he could breath, and ta-da! I’m on Bluesky. 🦋
Family-led academic grand rounds focused on ableism in pediatrics. Each presentation is by parents of children with medical complexities. They are clear, thoughtfully organized and impactful virtual presentations. Parents are welcome! More information below.
www.pediatrics.wisc.edu/education/pr...
A powerful read about a mom’s journey as a mother to a complex child. Thank you for this piece Laura. ♥️
www.cbc.ca/books/litera...
Caregiving comes in many forms. We care for our kids with complexities, some kids care for their parents with complexities. We are all bound to experience a caregiving role in our lives. A recent PBS special touches on the impacts of caregiving in the US.
www.pbs.org/show/caregiv...
