#LongCovid | researcher | Covid | infectious disease | health, disability, inequality in present and past | human-environment interactions | big data | medicine history | patient-led research | MA PHD| ≠ MD |
Dr Elisa Perego
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🚨 Some time ago, we have written to the authors of the “Clinical Care Guide” (Bateman Center) to express our deep concern about its portrayal of #LongCOVID.
While it addresses PEM, POTS & MCAS, it largely ignores the broader reality of this disease:
🔗 longcovidriseup.eu/bateman-letter/
I have to raise my severe concerns over this RECOVER trial. Exercise can be dangerous in Long Covid even without PEM (e.g. cardiovascular risk). "Exercise-pacing" can be dangerous with PEM-like manifestations. At any rate, exercise is no cure for Long Covid
www.medrxiv.org/content/10.6...
I have to raise my severe concerns over this RECOVER trial. Exercise can be dangerous in Long Covid even without PEM (e.g. cardiovascular risk). "Exercise-pacing" can be dangerous with PEM-like manifestations. At any rate, exercise is no cure for Long Covid
www.medrxiv.org/content/10.6...
Can someone please explain me what's an "activity pacing intervention" to prevent PEM? 😕🧐
(rhetorical question, of course)
Denying that SARS-CoV-2 infection leads to a broad range of sequelae across organs is pseudoscience. We need a case definition for Long Covid which accounts for such a broad range of sequelae. Denying this need is harmful for advocacy and patients alike. People must do better
#LongCovid
Denying that SARS-CoV-2 infection leads to a broad range of sequelae across organs is pseudoscience. We need a case definition for Long Covid which accounts for such a broad range of sequelae. Denying this need is harmful for advocacy and patients alike. People must do better
#LongCovid
Reducing Long Covid to a few symptoms that fit certain illness narratives is harmful. Refusal to acknowledge damage to organs such as heart and lungs can foster a climate where people will be denied care, and might die as a consequence. Patients deserve better. We deserve to live
Denying that SARS-CoV-2 infection leads to a broad range of sequelae across organs and body systems is pseudoscience. Denying that we need a case definition for Long Covid which accounts for such a broad range of sequelae is harmful for our advocacy. People must do better
Long COVID Rise Up
(This is from this trial and paper)
I have to raise my severe concerns over this RECOVER trial. Exercise can be dangerous in Long Covid and exercise is not a cure for Long Covid
www.medrxiv.org/content/10.6...
Dr Elisa Perego
Dr Elisa Perego
The anatomical proximity and direct connection between the olfactory bulb and the orbital prefrontal cortex (OFC) make it a key neuroinvasion route for #COVID in the brain. In patients with #NeuroCovid, we observe thrombotic events, hypometabolism and atrophy in this region.
