happy pride to everyone and especially this guy 💜
it shouldn't cost $350 to get a liter of saline plus magnesium at home
(I'm grateful the service exists, but like everything with this illness, it is a crushing financial burden to pay out of pocket for the actual treatments that help keep me functional and stable.)
me to my health insurance:
Yeah.
Also the author of the article is on here and I'm sorry to be a follow cop but I'm aghast that anyone I know follows him.
I encourage folks to rethink that. (Also he's evidently written stuff before saying he thinks gluten allergies are bullshit? Among other gaslighting bs.)
like seriously wtf is even the point of health ins anymore
my marketplace plan decided it now wants me to pay $170 for my monthly CBC/CMP (standing order from my Lyme doctor, a wise thing to do when you're doing long-term antimicrobial work, to make sure nothing's hitting your liver/kidneys poorly)
one of my most politically radical little dreams is to run an iv fluid service Jane Collective style
a liter of saline plus magnesium (LR would be even better for some folks) can be an indispensable tool for shortening ME/CFS crashes, as well as a number of other things (POTS management, etc) --
but despite the significant and undeniable benefits of just a simple liter of fluids (usually run over 60-120 mins so POTS-y bodies hold on to it better), insurance doesn't cover it
so the only way to get it is through bougie services who cater to hungover rich people and who charge a fortune
People really don't want this to be a physical disease but it is.
Tending to your mental health is good but not curative.