U.S. clinical trial or marketing fact-check:
* IRB/ethics approval/ClinicalTrials.gov registration clearly stated
* Named investigators + verified affiliations
* A protocol, preprint, or methods page
* Transparent data use + funding disclosures
Otherwise it is a red flag.
The ME/CFS community really needs psychologists and psychiatrists who understand the biomedical reality of ME/CFS, not those pushing psychological models or treatments that are disproven and potentially harmful in ME/CFS. www.mecfssandiego.com/mecfs-resour...
Austria 2026 ME/CFS News: Since April, Salzburg has had Austria’s first ME/CFS outpatient clinic. Demand has been overwhelming, with access limited to the region. It highlights the ongoing global gap in care for ME/CFS. www.tauernklinikum.at/de/anlaufste... www.weandmecfs.org/weme-foundat...
SSI Internet Discount: www.ssa.gov/news/en/advo... SSI Recipients Are Eligible for Discounted Internet Service Through the Lifeline Program
Chris Ponting: genetics links ME/CFS to nervous & immune system pathways & advises rest post-infection. scienceillustrated.com/health/peopl...
@solveme.bsky.social @decodemestudy.bsky.social & Ponting: genetics may reveal risk pathways, biomarkers, & treatment targets. youtube.com/watch?v=v6VQ...
@ludiekje.bsky.social MEGlobalChronicle article: introducing "A Quiet Storm" meglobalchronicle.wordpress.com/2026/06/04/a... an online art gallery showcasing the artwork of people who have lived with severe ME/CFS
Quadram COMPASS-ME study: seeks 30 women (18–45) with confirmed ME/CFS to volunteer (unpaid) to join research on whether microbes may affect immune function. Swab samples will be compared with healthy controls to identify potential microbial links. quadram.ac.uk/compass-me/
FDA extended deadline 7/11 for public input on drug repurposing & added a workshop (8/5): FDA needs priorities for disease areas & drug candidates feedback www.federalregister.gov/documents/20... workshop: www.reaganudall.org/news-and-eve... Asks: ME/CFS focus & FDA's CURE ID for off-label use data
"What is ME/CFS Like" Book by WIMEL Writers with Bateman Horne Center: wimel2.wordpress.com <- What is WIMEL/Pillow Writers wimel2.wordpress.com/2026/03/01/a... <- about the book www.amazon.com/What-Myalgic... <-buy the book!!!
