Otherwise known as @KoparaFallsKid.bsky.social
Movement As Medicine advocate. Follow my writing on Limberation.com
Rheumatoid Arthritis patient. Previously diagnosed Psoriatic Arthritis patient. Probably both. Two titantium knees. Two fused ankles.
Limberation - Limber Up To Live Life
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Blood test done. Results Monday.
I'm a bit emotionally fragile. I cried driving home. Sometimes doing all this fighting diseases completely alone is draining. Every now & then it would be nice to have someone hold my hand.
It is what it is, though.
OK, that's enough openness for today.
#ChronicIllness
The surgery has officially been rescheduled to, tentatively, August 8. 😮💨 Depending on blood tests.
Having bloods redone Saturday, but ENT guy agrees with rheumy, neutrophils too low for surgery. 🫣
My arthritis meds have been stopped too, so I'm likely to have a rough few weeks.😕
The saga continues. Just got my blood test results. Neutrophils are still low.
As I write, I have no idea if #surgery will go ahead or not.
Letter from ENT says, in part: "Ms D's chronic sinusitis symptoms are significant potential risk of disease extension to the orbit and brain
continue..."
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“Change your scenery, both physically & mentally..Also, don’t work on the same #tasks or projects every day..This will keep u mentally stimulated, gives u momentum & hv something to look forward to. - @AChVoice”: buff.ly/klEi0iN
#productivity #MondayBlogs #ChronicIllness #StuckAtHome #isolation
📰 Chronic Illness News from the Past Week:
1️⃣ A miniature injectable device is being developed that will help treat chronic pain and movement disorders. This new device is the size of a seed and powered wirelessly!
www.news-medical.net/news/2026061...
#ChronicIllnessCommunity
⬇️ more ⬇️
We talk to Sarah Emerson from Look Good Feel Better about how taking care of yourself during and after #cancer treatment can make a huge difference. shows.acast.com/69bd23ba7878...
New clinical trial
Magnetic Resonance Imaging to Detect Brain Damage in Patients With Multiple Sclerosis
#ClinicalTrials #MultipleSclerosis #MSchat #Neurology
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So I'm sitting here waiting for the specialists to make the call.
Risk of infection with surgery versus risk of brain issues if surgery is delayed.
I wish I wasn't sitting at home alone, frankly.
#ChonicIllness
