Long COVID/ME interested lung doctor | Campaigner | Independent SAGE | Co-Founder South Asian Heritage Month | Diversity Power List 24/25
Website: https://thelongcovidclinic.co.uk
Linktree: https://linktr.ee/binitakane
Binita Kane
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We are hopeful that the new Senedd will invest 🤞🏽
A huge thank you to Rob Messenger and the Welsh patient advocates for setting up the meeting, and the amazing Claire Jones and North Wales ME service for trailblazing.
It was a pleasure to meet with Tracey Williams at the Welsh Government offices in Cardiff to discuss the possibility of all-Wales service for ME. With her background in nursing, Tracey truly ‘gets it’ and the conversation was refreshingly honest.
Fellow Speakers: Prof Tom Trinick, Dr William Weir and Prof Chris Ponting @cgatist.bsky.social
Real change doesn’t happen without these persistent, informed, and collective patient voices. Grateful to be part of a community that is not only raising awareness, but actively shaping the future 💙
Huge thanks to Hope 4 ME and Fibro Northern Ireland - patient advocacy has been the driving force behind so much of the progress we’ve seen in the last few years.
It continues to challenge outdated narratives, amplifying lived experience, and push research and policy in the direction patients have long-needed.
In Belfast. Looking forward to this patient-led meeting of minds to push forward change for people living with chronic complex post-viral illnesses.
#longcovid #MECFS
Our new paper out today in Nature Comms, led by the amazing @profmarkfaghy.bsky.social
Current status and future perspectives on the mechanistic And pathophysiological understanding of Long Covid
www.nature.com/articles/s43...
#MEAwarenessMonth
🧵 by email this morning,
"On Friday 1 May our lawyers issued our second letter before claim. Our challenge is in direct response to the Government's announcement on 24 March that it would not begin to consider NHS provision for severe/very severe ME before April 2027.
1🪡7
Cardiovascular adjustments to gravitational stress (1991)
ntrs.nasa.gov/api/citation...
Reading this review on spaceflight adaptations and this line has caught me:
"Even vigorous exercise in the supine position fails to prevent orthostatic intolerance after bed rest"
