We stand with the ME community in urgently calling for stronger action to improve care & support for people with ME, particularly those who are severely & very severely affected. We will continue to work with Parliament to push for support, accountability & meaningful change.
We are grateful to our Parliamentary Champions for continuing to raise these important questions in Parliament.
Join our third PRIME workshop to learn more about post-exertional malaise (PEM).
PEM is the hallmark symptom of ME, where physical or mental activity can cause a delayed worsening of symptoms, often hours or days later. This can include debilitating fatigue, pain, brain fog, and flu-like symptoms.
🗓️ Date: Thursday, 30 July
🕑Time: 2pm-5pm, GMT
📍Location: online via Zoom
Unlike normal tiredness, PEM isn’t relieved by rest, and recovery can take days, weeks or longer.
This workshop will ask various questions about PEM, including what it is, what causes it, and how can it best be explained and defined?
Register for the PRIME International Symposium to explore emerging ME/CFS research with researchers, clinicians, charities and people with lived experience.
🗓️ 28 Sept 9am-29 Sept 2pm
Find out more and register here 👇
www.actionforme.org.uk/register-for...
🧬 The recording from last month’s Sequence ME & Long Covid webinar is now available to watch on our YouTube channel
🔗 Watch the recording here: youtu.be/2PFdsYCfiJo
📢 The recording from the second PRIME research webinar is now available on our YouTube channel!
🔗 Watch the recording here: www.youtube.com/watch?v=NMlM...
📢 Parliamentary written questions on severe & very severe ME have been submitted & answered.
Baroness Scott asked four questions in May.
Read the questions & answers here 👇
www.actionforme.org.uk/parliamentar...
Expert speakers include Maree Candish (Science for ME), Professor Mark Faghy (University of Loughborough), Marjon Wormgoor (independent researcher), Professor Todd Davenport (University of the Pacific) and Professor Maureen Hanson (Cornell University).
Register here 👇
us02web.zoom.us/webinar/regi...
