A UK registered charity for people with #MECFS and Long Covid (and Post Covid ME/CFS). We inform, educate, raise awareness, fund medical research and campaign for positive change.
RPs do not necessarily mean endorsement.
https://linktr.ee/meassociation
ME Association
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Search the free information database Medical Matters here:
Opening hours:
Monday – Friday: 10am-5pm
Thursday: late night until 9pm
Saturday: 10am-12noon
"Our research, based on polling of over 4,000 members of the public, found that, concerningly, nearly half (44%) of people currently caring do not feel their role as an unpaid carer is understood or valued by their community."
Carers Week 2026: Yvette’s Story
Yvette from Cumbria supports her husband, Andrew, a fourth-generation farmer, who has ME/CFS. Diagnosed 13 years ago, the couple have had to navigate a life very different to the one they once imagined.
Read their story: https://meassociation.org.uk/bupm
#MECFS
Medical Matters – Migraine-type headaches
Q: What are migraine-type headaches and are they more common in people with ME/CFS?
A: https://meassociation.org.uk/medical-matters/items/migraine-type-headaches/
#Migraine
**Trigger Warning: Upsetting Content** Petition: Caroline Roberts: Inpatient Leicester Royal Infirmary Hospital with very severe ME
Please consider signing & sharing: https://meassociation.org.uk/irts
#pwME #MECFS #MyalgicEncephalomyelitis #SevereME #NHS
Suzie, an NHS healthcare professional from Norfolk shares her experience of supporting her 16-year-old daughter who has ME/CFS and the positive support she’s received from her employer.
Thank you @carers-week.bsky.social for sharing Suzie's story!
#CarersWeek2026 #Carers #MECFS #pwME #MyalgicE
ME Connect is our free, confidential support service offering an understanding ear, information and signposting for people affected by ME/CFS and Long Covid.
Get in touch:
0808 801 0484
[email protected]
#MECFS #pwME #LongCovid #MEConnect
The ME Association & the 25% ME Group have worked together to create this new guide for carers, especially carers of people with Severe & Very Severe ME.
Caring is vitally important but it can be quite isolating….We understand the difficulties you may face.
Free download: meassociation.org.uk/v9cv
To mark Carers Week 2026, Carers UK and Carers Week supporter charities, including the ME Association, have published new research about carer friendly communities.
Read the full report on the carers week website: https://tinyurl.com/4wt34aak
#CarersWeek2026 #Carers #MECFS #LongCovid #pwME
