Unique supports & informs anyone born w/a rare chromosome or gene disorder, their families & carers. Eurordis Patient Organisation Award winner. http://rarechromo.org
Unique
Our first step total is here. We're aiming to raise £34,000 through sponsored challenges to reach a collective step total of 3 BILLION steps.
After week one, we have reached a step count of 409,622 and a total fundraising total of £7,442!
Share yours 👉 [email protected]
Two years ago, we started an exciting collaboration aimed at increasing the number of Unique guides. We are now very excited to announce that seven new guides to single gene disorders have been published.
Find them on our Disorder Guides page: https://rarechromo.org/disorder-guides/
Get you personalised #RareChromoDay image NOW!
Marisa, our fantastic volunteer is helping us to create Rare Chromo Day designs like these for anyone who wants one. Just share a photo and the name you'd like on the design to [email protected] and we'll get one made for you asap.
We'll be doing our next step count total shortly! If you've been taking on our challenge, get your latest step count in to us so we can include in next weeks total.
👣 [email protected]
With only two weeks to go until Rare Chromo Day, here's a few ways to get involved:
- Take on a fundraising challenge or donate
- Get your personalised 'I support' image
- Share our posts and your story
- Get your child's school involved
Learn more: rarechromo.org/rare-chromo-day-2026
This #VolunteersWeek, we want thank anyone who gives their time, energy, passion, lived experience and skills voluntarily to Unique.
Your dedication helps to extend our network, reduce #isolation and ensure our services meet the needs of our members. Get involved: [email protected]
🏆We are giving away a hoodie and teddy to the fundraiser that raises the most money AND the one that completes the most steps by the end of July!
If you haven't yet set up your fundraiser, you can get it up and running ready for #RareChromoDay here: https://ow.ly/NhqL50Zaqr1
Lucie chose to run the #BrightonMarathon for Unique after learning about the work we do while studying genetic counselling.
Lucie smashed the marathon, getting her personal best during the event and raised a £617 to help us continue our vital work. THANK YOU LUCIE!
Lucian has joined our 3 Billion #StepsChallenge, raising money by travelling at least 1 mile every day for 23 days - to represent his 23 sets of #chromosomes!
If you'd like to show support for Lucian, you can donate to his #fundraiser here: https://ow.ly/QgHV50ZaoKz
🚲 It's #WorldBikeDay. If you get out for a ride, let us know so we can add your ride to our 3 billion step count! Or use this opportunity to start a cycling challenge to help us raise £34,000 to continue our vital support for our families!
Learn more: https://ow.ly/j47J50Z6FKw
