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We are families working inside research, public health, and policy. Turning lived experience into system change for children. U.S. based.
Long Covid Families









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Read more: doi.org/10.1016/j.ac... #LongCovidFamilies #pediatricLongCOVID #LongCOVID
Questions have been raised about dosing in the RECOVER TLC low dose naltrexone (LDN) trial for children and adolescents with #LongCOVID. Long Covid Families reviewed the pediatric evidence, trial design, and safeguards. Read the full statement. longcovidfamilies.org/recover-tlc-...
New episode of the Joy Tax Podcast: pediatrician Dr. Elham Raker, who is also raising a child with #LongCOVID, on what it takes to advocate for kids and teens at the doctor's office. #LongCovidFamilies #PediatricLongCOVID
Routine vaccines keep showing up in dementia studies, each linked to lower risk. Shingles, flu, RSV, Tdap, pneumococcal, hepatitis. Scientists now think the shots may be training a branch of the immune system long believed to be untrainable, with effects that reach the brain.
Questions have been raised about dosing in the RECOVER TLC low dose naltrexone (LDN) trial for children and adolescents with #LongCOVID. Long Covid Families reviewed the pediatric evidence, trial design, and safeguards. Read the full statement. longcovidfamilies.org/recover-tlc-...
Long COVID is costing children their friendships. A new analysis of the NIH RECOVER pediatric study of nearly 2,000 kids, coauthored by LCF President Megan Carmilani, found children with #LongCOVID were significantly more likely to have diminished peer interactions. Link to article below.
New resource: Pediatric Long COVID School Navigation Roadmaps. Developed by education specialists, Long COVID experts, neuropsychologists, and families, these roadmaps help parents understand how symptoms may affect school and identify possible accommodations and supports. #PediatricLongCOVID
Long COVID is costing children their friendships. A new analysis of the NIH RECOVER pediatric study of nearly 2,000 kids, coauthored by LCF President Megan Carmilani, found children with #LongCOVID were significantly more likely to have diminished peer interactions. Link to article below.
A new paper highlights rising concern about stroke among survivors of severe COVID-19. The article adds to growing evidence that some people face increased stroke risk after infection, particularly following more severe illness. #LongCOVID link.springer.com/article/10.1...