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Disabled by very Severe Post-COVID ME/CFS. Not always able to use phone. Bedridden. Unable to Speak. I care. Ⓐ💚, (FR/DE/EN, but posts in english) Clinging onto the ledge above the abyss.
Yann (ME/LC)
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1) This video shows a unique care unit in Norway called Røysumtunet for people with #severeME & very severe ME. It is one of the only places where the sickest patients can receive specialised care. We need this everywhere!! #pwme #myalgicE #millionsmissing #severeME
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Anil van der Zee
They just released a blog on this if people wish to learn more (i recommend): mecfsresearchreview.me/2026/05/12/d...
1mo
(Thanks to @simonmcg.bsky.social for pointing this out)
This is monumental news. Apparently the 6000 whole genome sequencing (WGS) samples funded here is the largest WGS Genetic Study of a single illness to date. This feels very symbolic, ME/CFS Research going from lagging decades behind to being on the cutting edge. Hopefully this is a turning point.