#pwME #pwLC
Want to understand how many I know with #ME or Long Covid (or know of) on here, actually live in the UK & depend on our NHS for support?
Let me know of course if your NHS support is either:
- good?
- bad?
- ugly?
Looking forward to hearing from as many as possible 🙏
Happy with DMs
"We'll go down in history as the first society that wouldn't save itself because it wasn't cost-effective."
Kurt Vonnegut, American writer and novelist (1922-2007)
www.theguardian.com/commentisfre...
It's hard to say exactly how it is, for those of us living with and not against or sceptical about #pwME, but I think (correct me if I'm wrong), the word is betrayed.
We are betrayed on all sides, even by those claiming to support us, until there is nobody left that we can trust. Uniquely in the UK.
"Under the law, anyone guilty of a standard offence can receive a longer sentence if a court rules that the manner in which the crime was committed could be said to meet the definition of terrorism."
Why even bother with a jury when you can just make a ruling after the fact?
Dr Binita Kane describes succinctly what is wrong with the DHSC approach to devolving clinical leadership to a NHS that drives out expertise, "where's the value?"
Where is the value @sharonhodgsonmp.bsky.social @tessamunt.bsky.social @joplatt.bsky.social?
#ME #LongCovid
pca.st/episode/77ad...
Option 1: Force all tech companies to install spyware on everyone's phones "so that kids can't take nude pictures".
Option 2: Make it so parents can disable the camera of their kids' smartphone, or buy one without a camera.
I just don't know which one we should go for!!
100% on this.
Betrayed:
- GPs and Clinicians mistrust our diagnos
- DWP has targets to meet and we are the easiest group to discard
- As people with debilitating Ilness, placed on a battlefield of fear between disagreing sections / Roal Colleges supervised by same DHSC with mandate to make us beter.
