Survivor. Proud mother. Teacher. Activist. Trying to make a difference.
#PatientAdvocate #longcovidawareness #LCDC #March15 #ValueCognition #WHN
Interview with @theWHN :
https://youtu.be/YUgcqJ-m7C0
Becky Ancira Robertson
ICYMI: This well-organized guide to long covid treatments came out in March, but I just discovered it today via Ed Yong's newsletter:
www.rthm.com/resources/bl...
Common genetic clotting variants amplified D-dimer elevation 2+ years post-infection.
F2 (+31%), Factor V Leiden (+37%), MTHFR variants (+34-67%) linked to higher D-dimer. Genetic effects stronger in patients vs controls in obs study. (n=774) #LongCovid
Before I got Long COVID, I volunteered actively for non-profits, schools, and religious organizations. I've had to scale back and drop service work, and I've had to say no to helping with causes I would like to support.
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Via Journal of the American Medical Association aka JAMA, #LongCovid is likely twice as common as previously thought.
This will surprise no one who's been paying attention:
jamanetwork.com/journals/jam...
Workforce productivity losses account for nearly 40% of long COVID's projected $8 billion three-year economic impact on the US healthcare system.
https://news.gmj.ge/briefs/the-numbers-dont-lie-long-covids-8-billion-economic-burden-breaks-down/
clinicaltrials.gov/study/NCT066...
Baricitinib trial recruitment for #LongCovid
An evidence-supported guide covering treatments addressing multiple Long COVID symptoms & mechanisms — focused on prescription medication, with a limited set of supplements, OTC medications, procedure...
This week, 8 - 14 June, is Carer's Week - a chance to send love and care back to everyone in our community who is caring for someone with Long Covid. Their support too often goes unrecognised, and they are often left without support themselves. We see you, and we know how much you are giving.
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open.substack.com/pub/joshuasw...
Can confirm.
I was stunned by how quickly "progressive", "activist" groups and individuals clamoured for normalcy when it was abundantly clear that nothing was back to normal, anywhere, except the continued marginalization of disabled and chronically ill people.
#longCOVID #ME-CFS #activism
J. Offir, PhD
📢 Participants needed! The GLOW Trial is studying gut-based therapy for Long COVID at Uni Hospital Geelong. If you’re 18–65 with moderate–severe symptoms, you may be eligible.
Learn more 👉 [email protected] | 📞 (03) 4215 3078
This cohort study quantifies the gap between true postacute sequelae of SARS-CoV-2 burden and diagnostic code–based estimates, determines the proportion representing chronic disease, and characterizes...
A post that explores steps to confront a key flaw of virtual review that has been under-indexed in an age of attacks on science – ceding power through isolation.
open.substack.com
Emerge Australia
Persistent endothelial dysfunction and coagulation abnormalities are increasingly recognized as central components of post-COVID syndrome. However, substantial interindividual variability in long-term coagulation biomarkers suggests the presence of genetically determined susceptibility factors capab …
I don't know how to convince you to take care of your comrades.
But Long COVID impacts every fight for justice, every social movement. Honor the energy and integrity of the folks in my latest @thesicktimes.org feature. Be careful with each other so we can be dangerous together.
Workforce productivity losses account for nearly 40% of long COVID's projected $8 billion three-year economic impact on the US healthcare system.
#LongCOVID disrupts struggles for justice, as activists and organizers with the disease are forced to suspend or change their tactics, facing a community that largely ignores COVID precautions. Read more from @brittashoot.com: thesicktimes.org/2026/06/09/e...
Long COVID disrupts struggles for justice, as activists and organizers with the disease are forced to suspend or change their tactics, facing a community that largely ignores COVID precautions.
