Non-profit dedicated to raising the profile of #TwinAnemiaPolycythemiaSequence and supporting research. #TAPSisReal #TAPS #raredisease. Awareness day: March 3rd
tapssupport.com
Stichting TAPS Support
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#TwinTuesday | Ask Our Community
Have a question you haven’t had the chance to ask yet?
This is a space to ask our community and hear from others with lived experience of monochorionic twin complications. So what’s on your mind? You might not be the only person wondering.
#TAPSSupport
A lot of the information we share is passed on more than once. Social media makes that easier, because a single post can carry the same clear message without needing to be rewritten each time.
Find us on Facebook, Instagram, LinkedIn, Bluesky, and Threads, and follow us for updates.
We are a parent-led, independent organisation providing evidence-based information and support for both families and professionals. Our work is grounded in lived experience and focused on long-term outcomes. More: www.tapssupport.com
#TwinPregnancy
#TwinTuesday | Ask Our Community
Have a question you haven’t had the chance to ask yet?
This is a space to ask our community and hear from others with lived experience of monochorionic twin complications. So what’s on your mind? You might not be the only person wondering.
#TAPSSupport
Word of the week: dividing membrane
The dividing membrane confirms that twins do not share the same amniotic sac, which changes how the pregnancy is cared for.
Evidence and further reading:
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#WednesdayWordOfTheWeek
For families with monochorionic twins: a clear explanation of clinical trials, what taking part can look like, consent and your rights, plus questions you can bring to an appointment. The page includes a free downloadable guide. #TwinResearch www.tapssupport.com/what-ar...
For monochorionic twins, scans happen often. BBFF helps you remember what’s checked each time: Brain, Bladder, Fluid, Flow. This page explains what that means during ultrasound and on your report. #twinultrasound www.tapssupport.com/is-your...
Word of the week: chorionicity
Chorionicity is one of the first details established in a twin pregnancy, and one of the most important. It refers specifically to placental sharing, not whether the twins are identical or fraternal.
More:
www.tapssupport.com/ultraso...
#WednesdayWordOfTheWeek
#TwinTuesday | Ask Our Community
Have a question you haven’t had the chance to ask yet?
This is a space to ask our community and hear from others with lived experience of monochorionic twin complications. So what’s on your mind? You might not be the only person wondering.
#TAPSSupport
Ultrasound in twin pregnancy is detailed, & parents often leave scans with more questions than answers. This patient guide, based on ISUOG guidance & created with Prof. Asma Khalil, explains what scans look for & why it matters. Downloads included. #twinpregnancy www.tapssupport.com/ultraso...
