I write about shrinking reserves from #LongCOVID and #MECFS with brutal honesty and zero fluff. Also: Star Wars, comics, cats, and Penguins goals. 🚨 #LetsGoPens #PwME
https://darthfoo.substack.com
Fred Rossi
This explains A LOT.
Levinovitz's new book is called 'Demons by another name: Biology, belief & stories make us sick.'
It is clear that brain retaining fits the argument that he is making: that what was deemed as demons are still making us sick & the mind can miracle cure 1/8
The piece and the dialogue around it have taken a lot out of me. I’ve genuinely appreciated every thoughtful response. I may be slow to reply for a bit while I rest. Thank you all. #MECFS #LongCovid #PEM #PwME
darthfoo.substack.com/p/the-patien...
Video
Nearly 4AM. The muscle, joint and nerve pain is making sleep impossible. This is life with #LongCOVID and #MECFS. #PwME
Incremental gains are core to being a #pwME &/or a #pwLC
Every tiny bit of energy, friction, sludge I shave off can decide if I have the energy to enjoy my tiny life or am just surviving. For me it’s things like coffee left for me in a travel mug, HUE lights, the Visible app, & an ecobee thermostat.
Saw #TheMandalorian and #Grogu today. A lot of fun, & a real celebration of every era of #StarWars. Original Trilogy, Prequels, Clone Wars, Sequels, & of course Mando and Grogu fans all get something. Wanted it to push the story forward more, but it’s a wonderful entry point.
Fred Rossi
They call us obstacles to progress. I’m enrolled in the research.
My response to WIRED’s “The Painful Truth About Long Covid.”
darthfoo.substack.com/p/the-patien...
#LongCOVID #MECFS #Wired #PEM #CBT #GET
This was my reality before FSD. From my new essay, The Tools That Fit.
“There were shifts where I slept in the car afterward. Not because I wanted to. Because I had to.”
#LongCOVID #MECFS #PwME #ChronicIllness #Tesla
darthfoo.substack.com/p/the-tools-...
For years I was told the way out of this illness was effort. Push through. Build up. Don’t give in.
Here’s where that led:
“The danger now is not trying too little. It is having tried too hard, for too long, on the theory that effort was the cure.”
darthfoo.substack.com/p/the-patien...
My response to WIRED’s piece on Long COVID, from someone who taught CBT techniques before the disease made him a patient.
#LongCovid #MECFS #PwME #PostExertionalMalaise #PEM #ChronicIllness #DisabilityRights #pwLC
