Self-funded medical research organisation with one clear purpose – transforming the lives of people living with rare diseases and drug-resistant infections.
Learn more at lifearc.org
LifeArc
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We help partners navigate the clinical development journey of innovative new medical devices and diagnostics to support patient care.
Learn more about the device and diagnostics studies we're supporting here: http://bit.ly/47Jq7Em
We've partnered with Elpida Therapeutics to advance 3 clinical gene therapy programmes for ultra-rare childhood neurodegenerative diseases: Spastic Paraplegia type 50 (SPG50), CLN7 Batten disease and Charcot–Marie–Tooth type 4J. The first children are already taking part in a Phase III SPG50 trial.
Lung infections can still cause damage in cystic fibrosis, even when people feel healthier and cough up less sputum.
Precision-CF is working to improve how infections are detected and understood, including through a wider range of sample types. #CFWeek
CognoMND is a simple digital tool that could allow people with motor neuron disease to be assessed for cognitive and behavioural changes in their own time, from the comfort of their homes.
This could support earlier detection of changes and better care management.
🔗Learn more: https://t.ly/m_T4O
Our COO, Karen Skinner, wrote the foreword to the latest edition of Drug Discovery and Development by Pharma Press. She shares a timely perspective on the changing dynamics of the field and how to turn innovation into real-world impact.
Read it here: https://t.ly/b8Kx3
Health data can be transformative. For rare conditions, every data point matters.
By partnering with @ourfuturehealthuk.bsky.social, we're turning high-quality data into insights that could speed up diagnosis and enable better trials.
🎥Learn more: https://t.ly/KPQA4
#PartnerForChange
We’re delighted to feature in the new book Monarchy and Democracy: A History of Leadership, launched yesterday in the grounds of Westminster Abbey. The book celebrates the last 100 years of British leadership, with LifeArc illustrating the contribution of the life sciences sector.
Our LifeArc–Kidney Research UK Centre for Rare Kidney Diseases has created a children's book to help those living with these conditions feel seen and understood.
Told in rhyme, 'See Me' sheds light on the often invisible challenges of kidney disease.
📚 Order now: t.ly/b4ksx
Last year, we selected 4 research projects for our Motor Neuron Disease (MND) Drug Repurposing Programme. Collaborating to overcome the scientific and translational challenges of drug repurposing, they aim to fast-track new treatments for MND.
🔗 t.ly/FVS6b
What does partnership mean to us?
Bringing together expertise, tools, funding and support to turn discoveries into treatments for rare diseases and drug‑resistant infections.
Together, we can go further, faster.
🎥Watch this video to learn more: https://t.ly/NlpOa
