A non-profit social enterprise dedicated to people with Long Covid + ME. Shifting the paradigm one step at a time...
💙📚Home to the #pedanticzebra book club.
https://www.longcovidadvoc.com/
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Long Covid Advocacy
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Excellent article from David Tuller 🔥 on Alan Levinovitz’ 7,600-word love poem 🔥
Long Covid Advocacy @longcovidadvoc.com : Commentary by @drelke.bsky.social on the Long Covid article by Alan Levinovitz in WIRED magazine
longcovidadvocacy.substack.com/p/commentary...
archive.is/202606011112...
Screenshot from Science for ME weekly update
#LongCovid #PASC
Long Covid Advocacy
Tom Kindlon
Latest update about the Open Letter asking the Royal College of Psychiatrists to align with current evidence.
www.longcovidadvoc.com/post/open-le...
💫 UPDATE: We had a lovely friend of LCA hand deliver the Open Letter to @subodhdave1 President-elect of The Royal College of Psychiatrists
Signed by 58 orgs & 1200+ people! 💙
His secretary will ensure it is handed (all 16 pages of signatures) to him tomorrow.
#RCPsychIC
More about the letter👇
Long Covid Advocacy
The community is often demonised as angry or not clever enough to really understand
The real issue is that it is an incredibly strong mix of people bringing multiple disciplines, expertise & lived experience
That is difficult to hoodwink & we keep receipts!
It is mighty & it is you, so thank you
This is an appalling lapse of judgement and will have serious real life consequences for people
@henryholtbooks.bsky.social
More publicity about how chronic illness as psychogenic raises serious concerns about how diagnostic uncertainty is being narrativised.
This is a disaster for people already vulnerable & who so often have their illness demeaned, disbelieved & psycholgised.
Long Covid Advocacy
We have discovered that Alan Levinovitz's new book has already sold to publishers
And it's about psychogenic illness. No wonder he thinks Long Covid is 60-80% psychogenic & why he won't reconsider his framing. He is invested
That a major publisher @HenryHolt is running this raises serious concerns
Long Covid Advocacy
Long Covid Advocacy
Long Covid Advocacy
Long Covid Advocacy
We are proud to be one of the 58 orgs & 1200 individuals to sign this open letter regarding the framing of Long Covid in the Royal College of Psychiatrists 2026 International Congress
The response has been extraordinary. To date, the letter has received 1,200 individual signatories and the support of 58 organisations, including clinicians, researchers, patient advocates, and member...
www.longcovidadvoc.com
MEAction UK
My first post about that Wired piece: virology.ws/2026/06/09/t...
By David Tuller, DrPH Much has already been written about Alan Levinovitz’ 7,600-word love poem to the potential healing powers of so-called “mind-body” int ...
