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The gene therapy Zolgensma helped children born with a fatal disease grow up to run and play. But the cost was stunning: $2M per dose. While taxpayers and charities funded the drug’s early development, execs, venture-capital backers and a pharma giant have reaped the profits. (Pub. Feb. 2025)
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Taxpayers and charities helped develop Zolgensma. Then it debuted at a record price, ushering in a new class of wildly expensive drugs. Its story upends the widely held conception that high prices ref...
www.propublica.org
What a $2 Million Per Dose Gene Therapy Reveals About Drug Pricing
ProPublica