Our latest article features Dr. Stuart Turvey and Dr. Elie Haddad on how collaboration, clinical trials, precision health, and gene editing are helping transform pediatric rare disease research and access to treatment.
www.rarekidscan.com/news/rewriti...
Thank you to everyone who joined our Bill C-265 webinar yesterday. It sparked thoughtful conversation and shared commitment to advancing more efficient, patient-centred pathways to care.
One way to take action now: support the campaign by sending a letter to your MP: politraq.ca/activations/...
Don’t forget to register: Join us May 14th for a webinar about Bill C-265.
Learn more: us02web.zoom.us/webinar/regi...
RareKids-CAN was proud to host our Canadian MEET & GREET at #ASGCT2026 in Boston and connect with colleagues and collaborators from across Canada advancing gene and cell therapy research.
Stay tuned for details on our inaugural Canadian Gene & Cell Therapy conference coming in early 2027.
Join us June 2 for From Evidence to Access: Do Lived and Clinical Experiences Shape HTA Decisions?
Register here: us02web.zoom.us/webinar/regi...
LAST CHANCE TO REGISTER: Join us tomorrow (June 2nd) for From Evidence to Access: Do Lived and Clinical Experiences Shape HTA Decisions?
RSVP: us02web.zoom.us/webinar/regi...
#PediatricRareDisease #HTA #ClinicalResearch
As part of our #ClinicalTrialsDay Q&A series, RareKids-CAN Clinical Trial Navigator Daislyn Vidal shares insights on supporting families and helping improve access to #pediatricraredisease clinical trials.
Read the Q&A here www.rarekidscan.com/news/connect...
Last chance to register!
Join us Monday, June 15 for a practical ATMP primer for clinical coordinators, nurses, and pharmacists working in pediatric rare disease trials.
📅 June 15
⏰ 3 - 4 PM ET
➡️ Register here: us02web.zoom.us/webinar/regi...
#PediatricRareDisease #RareDiseaseResearch
Join us June 15th for a practical introduction to Advanced Therapy Medicinal Products (ATMPs) for clinical coordinators, nurses, pharmacists, and research staff working in pediatric rare disease trials.
Register now: us02web.zoom.us/webinar/regi...
#pediatricraredisease #rarediseaseresearch
Improving access to pediatric rare disease #clinicaltrials requires more than research — it takes coordination, collaboration, and national readiness.
Read our Q&A with Davy Eng, RareKids-CAN Clinical Trial Navigator here: www.rarekidscan.com/news/buildin...
#RareDisease #PediatricResearch