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*New publication* Development of a question prompt list to support Consent for Genomic Testing (CoGenT) and research Just published with @springernature.com in Human Genetics doi.org/10.1007/s00439-026-02839-0 @sydneyhealthliteracylab.org.au
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Psychosocial impacts of spontaneous and medically induced premature ovarian insufficiency and early menopause: A systematic review and thematic synthesis of qualitative studies - Emma Minchin et al. in Maturitas www.maturitas.org/article/S037...
‘Staggering’ number of people believe unproven claims about vaccines, raw milk and more www.nature.com/articles/d41...
The skin check of the future: improving early detection of melanoma while avoiding overdiagnosis link.springer.com/article/10.1... This expert synthesis provides a framework to navigate the complex landscape of melanoma detection, optimizing benefits and minimizing harms across diverse populations.
doi.org/10.1007/s00439-026-02839-0 38 cancer patients participating (or not) in genomic research, carers, researchers & clinicians. 2 interviews: info needs & suggested Qs, then feedback on draft QPL. Concise answers for all questions, worded using health literacy principles & refined per feedback.
15 Best Dyslexia-Friendly Fonts for Students That Boost Reading Confidence tpd.edu.au/dyslexia-fri... Just came across this. Maybe useful for our work @sydneyhealthliteracylab.org.au and more broadly too?
doi.org/10.1007/s00439-026-02839-0 QPL has 29 items on Comprehensive Genomic Profiling, Results of CGP, & Genomic Research. Participants say QPL will empower patients/carers, support clinicians/researchers to engage with patient/family queries, & enable better informed consent in genomic oncology.
doi.org/10.1007/s00439-026-02839-0 Genomic tests are increasingly used to personalise cancer treatment but their complexity makes informed consent hard. With patients & professionals, we made a Question Prompt List supporting communication & informed consent for tumour profiling & genomic research.
doi.org/10.1007/s00439-026-02839-0 The Consent in Genomic Testing (CoGenT) QPL + answers: Developed rigorously & collaboratively. Simple, flexible tool. Perceived as acceptable & useful for patients, carers, clinicians & researchers doing informed consent for genomic research with tumour profiling.
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Clear, accessible consent forms matter! Discover the nationally endorsed InFORMed PICF template by CT:IQ & Bellberry. Learn more: https://ow.ly/x82H50YEN3b ✅ #Research #Ethics
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Jolyn Hersch PhD
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Jolyn Hersch PhD
Jolyn Hersch PhD
Jolyn Hersch PhD
Jolyn Hersch PhD
Jolyn Hersch PhD
Jolyn Hersch PhD
Jolyn Hersch PhD
Jolyn Hersch PhD
Australian Research Data Commons (ARDC)