Helping people living with Progressive Supranuclear Palsy & Corticobasal Degeneration to live the best life they can #TeamPSPA🧠
Sign-up to our Pathway to Progress Challenge here: https://www.pspassociation.org.uk/pathway-to-progress/
The PSP Association
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It's promising interest in #ClinicalTrials for Progressive Supranuclear Palsy has been increasing in recent years.
PSPA Trustee, Dr Boyd Ghosh, shares how there are more PSP trials than ever, with more to come.
#ClinicalTrialsDay
The PSP Association
Nature Partner Journals are seeking essays from clinicians, researchers & advocates on all forms of Dementia. Help shape “The Human Connection” journal. Find out more & submit your experience: ow.ly/CSNi50YIRfx #NeuroScience #BrainHealth #MedicalJournals
We support @mariecurieuk.bsky.social’s call on the #government to ensure people living with #terminal conditions like PSP & CBD can access #financial support easier. Our recent #survey found 65% of people with PSP & CBD experience new costs they didn’t have before.
Only 1 in 5 people get #NHS Continuing Healthcare (CHC) funding, with postcode lotteries making access unfair. We’re supporting Dementia UK's call to #FIXCHC for fairer assessments and funding. Sign
@dementiauk.bsky.social petition: ow.ly/S90x50Z6CJ9 #healthcare
PSPA's CEO James Cusack, and Research Coordinator Megan Hodgson are excited to be at his year's #TauGlobalConference in #Washingston which started yesterday! @alzassociation.bsky.social @curepsp.bsky.social #RainwaterCharitableFoundation #Tau #TauResearch #Tau2026 #Conference
#Healthcare professionals: Join us in #Stirling on 18 June for our #free PSPA Regional #Awareness event! Learn to spot PSP & CBD, understand progression, and improve support. Book now: ow.ly/jmWP50YY2aO #PSP #CBD #Scotland
#Health & social care professionals: Join us in #Aberdare, South #Wales on Fri 3 July for our free PSPA Awareness Event! Learn to spot signs of PSP & CBD, understand progression, and explore support. Hear from our Helpline Care Navigator, Dionne. Book free: ow.ly/yC9x50Z73Go #FreeEvents #Healthcare
Join us at Neuro2026: The PSP & CBD International #Research Symposium with #CurePSP on 5–6 Nov 2026 at Hilton London Bankside for the latest in PSP & CBD research. Open to all researchers and #medical professionals. More info & tickets: ow.ly/fWsP50YMthA #Neuro2026 #Research
Today’s #Carers Week’s focus is education.
46% of young carers leave school with five GCSEs, compared to 60-65% of peers without caring responsibilities.
Explore the Building Carer Friendly Communities blueprint for ways to inspire action in education.
Learn more: https://bit.pulse.ly/zbk3fajufc
The PSP Association
The PSP Association
Our next policy group meeting is taking place tomorrow, 11:00-12:00, on Teams. The meeting will be a chance to discuss the results from Scotland's elections and learn a bit about the make up of the new Scottish Parliament.
Thank you to Mark Jackson from @pspassociation.bsky.social for chairing.
The PSP Association
The PSP Association
The PSP Association
The PSP Association
The PSP Association
Carers Week
Neurological Alliance of Scotland
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People living with life-limiting illnesses that will only get worse shouldn’t have to be put through repeated benefits reassessments.
They add stress and paperwork at a time when people are already dealing with so much.
It has to stop. 🛑
www.independent.co.uk/news/uk/home...
Exclusive: The current system is ‘simply wrong’, more than 30 organisations write
