Speaking up for everyone affected by severe/very severe ME.
#MEKills #MaeveInquest #LongCovidME
backstory: https://x.com/swastrosarah?lang=en-GB Justice4ME.uk
ME is much more than chronic fatigue; it kills every year.
sarah boothby
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#academicsky
Read the testimonials, please.
"It shouldn’t have to come to a legal challenge, but 30 years is too long to wait with no change and no hope. #pwME have been utterly failed by the medical establishment and we deserve better."
I 100% agree with you and many other people. Just wish I read this earlier on in my illness. PEM had already caused irreparable damage to my body before I knew what it was called.
FunkisHen
Trish Greenhalgh
Yesterday was the start of Carers Week 2026. We are celebrating carers of ME sufferers by sending special BearHugs Smiles to thank the wonderful carers for all they do and to show them how much they are appreciated. Lots of love to all carers, you are amazing 🩵
and what sickens me is that only one Minister ever took the time to find out, or do anything to help you. @theandrewgwynne.bsky.social.
Tree of the day
I am so proud to be associated with those living with very severe #ME. You are the most courageous, determined and intelligent people ever. So few know anything about what you are facing, or how the UK State lines up to attack you through NHS 'standard operating procedures'.
Update due justice4me.uk
I am so proud to be associated with those living with very severe #ME. You are the most courageous, determined and intelligent people ever. So few know anything about what you are facing, or how the UK State lines up to attack you through NHS 'standard operating procedures'.
Update due justice4me.uk
sarah boothby
This #research found that many #children and young people living with #LongCovid face challenges that go beyond their physical symptoms. The study highlighted how #stigma and #misunderstanding can affect different areas of life.
www.nature.com/articles/s41...
#longcovidkids #longcovidresearch
Campaigning for ME (Myalgic Encephalomyelitis) to be medically managed safely, to protect families from permanent disability or death from neglect of the illness.
Campaigning for ME (Myalgic Encephalomyelitis) to be medically managed safely, to protect families from permanent disability or death from neglect of the illness.
