Former professional ballet dancer | Bed/sofa-bound M.E. patient | Using BlueSky to raise awareness for #MyalgicE | #IACC I #PAIS
#art2cureME #pwme #millionsmissing
Anil van der Zee
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GLP-1 RAs - Hype, Hope and Hidden Dangers
A rare published presentation from the colloquium, Dr Steve Gardner of PrecisionLife on GLP-1 receptor agonists and what the science means for ME.
youtube.com/watch?v=LFI_...
Interessant stuk door Gorm Palmgren over onderzoek van Chris Ponting en Ian Lipkin. De omschrijving van ME zou iets beter gekund hebben, maar verder niet slecht voor Nederlandse begrippen.
#pwme #myalgicE #millionsmissing
wibnet.nl/gezondheid/o...
Doctor with 2 children who have Long-Covid criticizes the Wired article and also started a petition.
www.reddit.com/r/covidlongh...
#LongCovid #LongCovidkids #kidswithME #pwme #millionsmissing
"Low-dose naltrexone (LDN) failed to outperform placebo in reducing pain or improving secondary outcomes in women with fibromyalgia, according to data presented at the European Alliance of Associations for Rheumatology (EULAR) 2026 Annual Meeting."
www.medscape.com/s/viewarticl...
David Tuller about the Wired article by Alan Levinovitz.
*Levinovitz calls for robust research into mind-body interventions. But he fails to mention two major clinical trials that pertain directly to his argument—a perplexing omission."
virology.ws/2026/06/09/t...
They call us obstacles to progress. I’m enrolled in the research.
My response to WIRED’s “The Painful Truth About Long Covid.”
darthfoo.substack.com/p/the-patien...
#LongCOVID #MECFS #Wired #PEM #CBT #GET
My first post about that Wired piece: virology.ws/2026/06/09/t...
Anil van der Zee
Anil van der Zee
It should’ve been quite easy to find one. In a survey of 1,096 patients by the Norwegian ME Association, 50% reported getting worse after the Lightning Process. 25% became seriously worse.
www.me-foreningen.info/wp-content/u...
Anil van der Zee
The Wired article features several personal recovery stories from people who say brain retraining helped them. But I couldn’t find any comparable personal accounts from people who say these programmes didn’t work, or made them worse.
Here is one from a German TV documentary.
I taught Cognitive Behavioral Therapy (CBT) before Long COVID made me a patient. WIRED got the story exactly backward.
'There’s an awful lot of work to be done to figure out what the exact protein targets are of the autoantibodies and what sets off their production in susceptible individuals. Ideally insights into that might help you identify such people prospectively.'
www.science.org/content/blog...
Anil van der Zee
Fred Rossi
By David Tuller, DrPH Much has already been written about Alan Levinovitz’ 7,600-word love poem to the potential healing powers of so-called “mind-body” int ...
Explore this post and more from the covidlonghaulers community
www.reddit.com
Je bent gevloerd en kunt je moeilijk concentreren, en hoeveel je ook rust, je raakt die uitputting maar niet kwijt. Dat is het dagelijks leven van miljoenen mensen – maar tientallen jaren dachten veel...
By David Tuller, DrPH Much has already been written about Alan Levinovitz’ 7,600-word love poem to the potential healing powers of so-called “mind-body” int ...
Highlights from recent German TV that looked at brain retraining for #MECFS.
A doctor with #MECFS says the programme made her feel she just had to keep trying harder. She eventually suffered a severe crash.
She is “angry” and says that these programmes are endangering people.
