The Zebra Alliance represents a beacon of hope and solidarity for navigating the challenging waters of Ehlers-Danlos Syndrome, Rare Diseases, and Chronic Illness.
Education âĒ Resources âĒ Advocacy
https://linktr.ee/thezebraalliance
The Zebra Alliance Community
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A popular antidepressant is being recalled because it may contain elevated levels of a cancer-causing substance.
A popular antidepressant is being recalled because it may contain elevated levels of a cancer-causing substance.
A study found that stopping and restarting GLP-1s could make the drug less effective in weight loss. #Health
Us women have to be careful as our warning signs for a heart attack can be much different than men, and then there is the below: #SpontaneousCoronaryArteryDissection ðŦâïļ
#SCAD #rarediseases #hearthealth #heartattack #womenshealth
People who make rude comments will be blocked: there are descriptive words for folks who enjoy being cruel to people because they believe they are smarter, and those words are:
- Sanctimonious
- Condescending
- Pedant(ry)
- Narcissist
None are positive human traits. ðð
linktr.ee/thezebraalliance
(Comorbid) Heat Intolerance:
It isnt just feeling overwhelmingly hot.
1) Syncope
2) Nausea
3) Swelling
4) Headaches/Migraines
5) Weakness
6) Brain Fog
7) Breathlessness
8) Intense Fatigue
9) Tachycardia
10) Excessive Sweating or lack thereof
linktr.ee/thezebraalliance #heatintolerance #dysautonomia
(Comorbid) Heat Intolerance:
It isnt just feeling overwhelmingly hot.
1) Syncope
2) Nausea
3) Swelling
4) Headaches/Migraines
5) Weakness
6) Brain Fog
7) Breathlessness
8) Intense Fatigue
9) Tachycardia
10) Excessive Sweating or lack thereof
linktr.ee/thezebraalliance #heatintolerance #dysautonomia
For many people living with #EhlersDanlossyndromes (EDS) or #hypermobilityspectrumdisorders (HSD), diagnosis is only the start. The next challenge is navigating care, being heard, finding support, and accessing joined-up services. â
Spontaneous Coronary Artery Dissection (SCAD) is a rare cardiac emergency causing heart attacks in young, healthy women with no typical risk factors. It is underdiagnosed and poorly understood.
Learn more: scadalliance.org
You may be rare, but you're not alone!
#rareDisease #rareDiseaseAwareness
