Friedrich's Ataxia has been in the news a lot over the past week. @niamhnih.bsky.social wrote this piece about it for us in January. She, too, is waiting for Skyclarys.
www.irishexaminer.com/opinion/comm...
'I’ve lost a lot of my fine motor skills, my eyesight is getting fuzzier, and my speech is slurring a lot more. I would give anything for this drug'
