The first charity supporting & advocating for children & young people with Long Covid & overlapping illness.
#LongCovidKids #LongCovid #PaediatricLongCovid
#LongCovidAwareness #MECFS
At Long Covid Kids, we have seen and shared similar experiences reported by many young people. Families regularly share stories of children and young people feeling disbelieved, misunderstood, or dismissed by others.
Children and families described experiences of not feeling believed or understood by healthcare professionals, friends, teachers, and others around them. These experiences can impact relationships, self-confidence, and how young people see themselves..
The survey results supported these personal accounts, suggesting that stigma is not experienced by just a few families but may be a common challenge for many children and young people living with Long Covid.
At Long Covid Kids, we have seen similar experiences reported by many of our supporters.
Send our template letter to your elected representative today and ask them to attend the APPG on #LongCovid on the 24th June.
Paediatric focus.
They will hear directly from a young person with Long Covid, a presentation from LCK and NHS colleagues.
www.longcovidkids.org/post/all-par...
The Office for National Statistics estimates that around 110,000 children in England & Scotland are living with Long Covid symptoms lasting 12 weeks or more.
Friends, if you live in the UK, please help us by contacting your elected representatives. Letter template below!
#LongCovid #LongCovidKids
The next APPG on Long Covid meeting will be held on Wednesday 24 June at 4pm.
@longcovidkids.bsky.social will be presenting on the impact of Long Covid on Children and Young People. Please do write to your MP and ask them to attend this very important and insightful session.
#LongCovid #APPG
I’m thrilled that @longcovidkids.bsky.social appointed George to guide the mission.
His appointment strengthens our commitment to keep the needs of young people central and, I hope, inspire more young people to share their views and get involved.
#Charity #YoungVoices #ChildrensRights
This #research found that many #children and young people living with #LongCovid face challenges that go beyond their physical symptoms. The study highlighted how #stigma and #misunderstanding can affect different areas of life.
www.nature.com/articles/s41...
#longcovidkids #longcovidresearch
These experiences mirror the survey findings & suggest that stigma is a widespread issue affecting many young people living with #LongCovid.
Early research found that discursive practices by journalists contribute to experiences of epistemic injustice.
journals.plos.org/globalpublic...
The APPG will focus on the experiences, challenges and needs of children and young people living with Long Covid, ensuring that their voices and realities are at the centre of the conversation.
Send our template letter to your elected representative today and ask them to attend the APPG on #LongCovid on the 24th June.
Paediatric focus.
They will hear directly from a young person with Long Covid, a presentation from LCK and NHS colleagues.
www.longcovidkids.org/post/all-par...
Sammie McFarland
Long Covid Support
Danielle Beckman
The APPG will focus on the experiences, challenges and needs of children and young people living with Long Covid, ensuring that their voices and realities are at the centre of the conversation.