Horizontal advocate for #pwME. 🇳🇱 in 🏴.
Ally. Cis. PwME/LC. Volunteer with @meactionscotland.bsky.social. He/Him. #SaveSavannah #BIPOCLivesMatter #TransLivesMatter #EndGenocide #CovidIsAirborne #YallMaskin #CleanTheAir
Michiel
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I've been asked to publish this statement from some of the families affected by NHS England's decision in Brighton.
Save Caroline Roberts’ Life now: A very severe ME/CFS patient with high mortality risk. - Sign the Petition! c.org/bpWkjkfLfN via @UKChange
*Template in petition to send email to hospital*
#JusticeForME #MEcfs
“… instead of receiving the care she desperately needs, Caroline's condition has worsened due to inadequate care, and there is now a push from the hospital to discharge her prematurely while in a life threatening PENE/PEM crash.“
Don't blame it on the virus🎶
Don't blame it on the gaslight
Don't blame it on the mask fright
Blame it on the boogie🎶
IN TWO DAYS, on MON 15th, you can have your voice heard directly by those attending the RCPsych Congress.
Congress is well attended, with a strong online presence. By including #RCPsychIC we can connect directly & continue the conversation.
Template to C+P below 👇️
The scenes we saw in Glasgow earlier this week, as racists took to the streets to intimidate and threaten ethnic minority Glaswegians were despicable, and this afternoon we showed a tiny, outnumbered crowd of bigots that we don't want their hatred in our city.
***HELP CAROLINE GET THE SPECIALIST CARE SHE URGENTLY NEEDS***
Warning: post contains details of a person suffering from very severe ME.
My poem, If I Lie Here. Written years ago, still relevant! If you have Instagram, you can hear me reading it on my account over there: @craftingapaththroughillness
#chronicillness #invisibleillness #mecfs #ME/CFS #poetry #nature #resting #chronicfatigue #chronicpain
Jolyon Maugham KC
💫 Campaign Update: We have received a reply from @rcpsych.bsky.social President Lade Smith about Long Covid at Congress.
We welcome the College entering the discussion but would note that our concerns remain. The key issues we raised as a community...
New article from the team of @profmarkfaghy.bsky.social highlighting how lived experience should be part of all stages of research and not simply tokenistic.
Patients are the expert in their condition and there is always more to hear and learn from them.
link.springer.com/content/pdf/...
